Emerging roles and opportunities for rare disease patient advocacy groups.
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| Title: | Emerging roles and opportunities for rare disease patient advocacy groups. |
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| Authors: | Patterson AM; Department of Genetic Medicine, Johns Hopkins Hospital, Baltimore, MD 21287, USA., O'Boyle M; Coalition of Patient Advocacy Groups, Rare Diseases Clinical Research Network, Arlington, VA, USA., VanNoy GE; Center for Mendelian Genomics and Program in Medical and Population Genetics, Broad Institute of MIT and Harvard, Cambridge, MA, USA., Dies KA; Rosamund Stone Zander Translational Neuroscience Center, Boston Children's Hospital, Boston, MA, USA. |
| Source: | Therapeutic advances in rare disease [Ther Adv Rare Dis] 2023 Apr 24; Vol. 4, pp. 26330040231164425. Date of Electronic Publication: 2023 Apr 24 (Print Publication: 2023). |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Sage Country of Publication: England NLM ID: 9918557474706676 Publication Model: eCollection Cited Medium: Internet ISSN: 2633-0040 (Electronic) Linking ISSN: 26330040 NLM ISO Abbreviation: Ther Adv Rare Dis Subsets: PubMed not MEDLINE |
| Database: | MEDLINE Ultimate |
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