Recruiting for an International Rare Disease Clinical Trial Readiness Study during the COVID-19 pandemic: Challenges and solutions.

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Title: Recruiting for an International Rare Disease Clinical Trial Readiness Study during the COVID-19 pandemic: Challenges and solutions.
Authors: Eichinger K; Department of Neurology, University of Rochester, Rochester, New York, USA., Behrens-Spraggins S; Department of Neurology, University of Rochester, Rochester, New York, USA., Sowden JE; Department of Neurology, University of Rochester, Rochester, New York, USA., Pareyson D; Department of Clinical Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Reilly MM; Centre for Neuromuscular Diseases, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK., Scherer SS; Department of Neurology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA., Shy ME; Department of Neurology, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA., Herrmann DN; Department of Neurology, University of Rochester, Rochester, New York, USA.
Corporate Authors: ACT-CMT Study Group
Source: Journal of the peripheral nervous system : JPNS [J Peripher Nerv Syst] 2023 Sep; Vol. 28 (3), pp. 528-529. Date of Electronic Publication: 2023 Jun 04.
Publication Type: Letter; Research Support, N.I.H., Extramural
Journal Info: Publisher: Wiley Country of Publication: United States NLM ID: 9704532 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1529-8027 (Electronic) Linking ISSN: 10859489 NLM ISO Abbreviation: J Peripher Nerv Syst Subsets: MEDLINE
Database: MEDLINE Ultimate
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ISSN:1529-8027
DOI:10.1111/jns.12559