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Recruiting for an International Rare Disease Clinical Trial Readiness Study during the COVID-19 pandemic: Challenges and solutions.

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Title: Recruiting for an International Rare Disease Clinical Trial Readiness Study during the COVID-19 pandemic: Challenges and solutions.
Authors: Eichinger K; Department of Neurology, University of Rochester, Rochester, New York, USA., Behrens-Spraggins S; Department of Neurology, University of Rochester, Rochester, New York, USA., Sowden JE; Department of Neurology, University of Rochester, Rochester, New York, USA., Pareyson D; Department of Clinical Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Reilly MM; Centre for Neuromuscular Diseases, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK., Scherer SS; Department of Neurology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA., Shy ME; Department of Neurology, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA., Herrmann DN; Department of Neurology, University of Rochester, Rochester, New York, USA.
Corporate Authors: ACT-CMT Study Group
Source: Journal of the peripheral nervous system : JPNS [J Peripher Nerv Syst] 2023 Sep; Vol. 28 (3), pp. 528-529. Date of Electronic Publication: 2023 Jun 04.
Publication Type: Letter; Research Support, N.I.H., Extramural
Journal Info: Publisher: Wiley Country of Publication: United States NLM ID: 9704532 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1529-8027 (Electronic) Linking ISSN: 10859489 NLM ISO Abbreviation: J Peripher Nerv Syst Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Recruiting for an International Rare Disease Clinical Trial Readiness Study during the COVID-19 pandemic: Challenges and solutions.
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  Data: <searchLink fieldCode="AU" term="%22Eichinger+K%22">Eichinger K</searchLink>; Department of Neurology, University of Rochester, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Behrens-Spraggins+S%22">Behrens-Spraggins S</searchLink>; Department of Neurology, University of Rochester, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Sowden+JE%22">Sowden JE</searchLink>; Department of Neurology, University of Rochester, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Pareyson+D%22">Pareyson D</searchLink>; Department of Clinical Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Reilly+MM%22">Reilly MM</searchLink>; Centre for Neuromuscular Diseases, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK.<br /><searchLink fieldCode="AU" term="%22Scherer+SS%22">Scherer SS</searchLink>; Department of Neurology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA.<br /><searchLink fieldCode="AU" term="%22Shy+ME%22">Shy ME</searchLink>; Department of Neurology, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Herrmann+DN%22">Herrmann DN</searchLink>; Department of Neurology, University of Rochester, Rochester, New York, USA.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Wiley%22">Wiley </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>9704532 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1529-8027 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2210859489%22">10859489 </searchLink><i>NLM ISO Abbreviation: </i>J Peripher Nerv Syst <i>Subsets: </i>MEDLINE
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        Value: 10.1111/jns.12559
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              Text: 2023 Sep
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