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The real world experience of pediatric primary hyperoxaluria patients in the PEDSnet clinical research network.

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Title: The real world experience of pediatric primary hyperoxaluria patients in the PEDSnet clinical research network.
Authors: Ching CB; Department of Pediatric Urology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA. christina.ching@nationwidechildrens.org., Dickinson K; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Karafilidis J; Dicerna Pharmaceuticals, Cambridge, MA, USA., Marchesani N; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Mucha L; Dicerna Pharmaceuticals, Cambridge, MA, USA., Antunes N; Dicerna Pharmaceuticals, Cambridge, MA, USA., Razzaghi H; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Utidjian L; Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA, USA., Yonekawa K; Department of Pediatrics, Division of Nephrology, Seattle Children's Hospital, Seattle, WA, USA., Coplen DE; Department of Surgery, Division of Urology, St. Louis Children's Hospital, St. Louis, MO, USA., Muneeruddin S; Department of Pediatrics, Division of Nephrology, AI DuPont Children's Hospital, Wilmington, DE, USA., DeFoor W; Department of Surgery, Division of Urology, Cincinnati Children's Hospital and Medical Center, Cincinnati, OH, USA., Rove KO; Department of Pediatric Urology, Children's Hospital Colorado, Aurora, CO, USA., Forrest CB; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Healthcare Management, Perelman School of Medicineat the , University of Pennsylvania, Philadelphia, PA, USA., Tasian GE; Department of Surgery, Division of Urology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Biostatistics, Epidemiology, and Informatics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
Source: European journal of pediatrics [Eur J Pediatr] 2023 Sep; Vol. 182 (9), pp. 4027-4036. Date of Electronic Publication: 2023 Jul 01.
Publication Type: Journal Article
Journal Info: Publisher: Springer Verlag Country of Publication: Germany NLM ID: 7603873 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1432-1076 (Electronic) Linking ISSN: 03406199 NLM ISO Abbreviation: Eur J Pediatr Subsets: MEDLINE; In Process
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Ching+CB%22">Ching CB</searchLink>; Department of Pediatric Urology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA. christina.ching@nationwidechildrens.org.<br /><searchLink fieldCode="AU" term="%22Dickinson+K%22">Dickinson K</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Karafilidis+J%22">Karafilidis J</searchLink>; Dicerna Pharmaceuticals, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Marchesani+N%22">Marchesani N</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Mucha+L%22">Mucha L</searchLink>; Dicerna Pharmaceuticals, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Antunes+N%22">Antunes N</searchLink>; Dicerna Pharmaceuticals, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Razzaghi+H%22">Razzaghi H</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Utidjian+L%22">Utidjian L</searchLink>; Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Yonekawa+K%22">Yonekawa K</searchLink>; Department of Pediatrics, Division of Nephrology, Seattle Children's Hospital, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Coplen+DE%22">Coplen DE</searchLink>; Department of Surgery, Division of Urology, St. Louis Children's Hospital, St. Louis, MO, USA.<br /><searchLink fieldCode="AU" term="%22Muneeruddin+S%22">Muneeruddin S</searchLink>; Department of Pediatrics, Division of Nephrology, AI DuPont Children's Hospital, Wilmington, DE, USA.<br /><searchLink fieldCode="AU" term="%22DeFoor+W%22">DeFoor W</searchLink>; Department of Surgery, Division of Urology, Cincinnati Children's Hospital and Medical Center, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Rove+KO%22">Rove KO</searchLink>; Department of Pediatric Urology, Children's Hospital Colorado, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Forrest+CB%22">Forrest CB</searchLink>; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Healthcare Management, Perelman School of Medicineat the , University of Pennsylvania, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Tasian+GE%22">Tasian GE</searchLink>; Department of Surgery, Division of Urology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Biostatistics, Epidemiology, and Informatics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
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