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Assessing Psychosocial Risk and Resilience to Support Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement.

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Title: Assessing Psychosocial Risk and Resilience to Support Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement.
Authors: Hardy SJ; Center for Cancer and Blood Disorders, Children's National Hospital, Washington, DC.; Departments of Pediatrics and Psychiatry and Behavioral Sciences, George Washington University School of Medicine and Health Sciences, Washington, DC., Crosby LE; Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, Ohio.; Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio., Porter JS; Department of Psychology and Biobehavioral Sciences, St Jude Children's Research Hospital, Memphis, Tennessee., Sil S; Department of Pediatrics, Emory University School of Medicine, Atlanta, Georgia.; Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, Georgia., Valrie CR; Department of Psychology, Virginia Commonwealth University, Richmond, Virginia., Jonassaint CR; Department of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania., Bediako SM; Center for the Advancement of Science Leadership and Culture, Howard Hughes Medical Institute, Chevy Chase, Maryland., Andrews C; Sickle Champions Men's Action Network, Atlanta, Georgia., Rivera M; Sickle Cell Community Consortium, Cumming, Georgia., Woolford T; Sickle Cell Reproductive Health Education Directive, Baltimore, Maryland., Coleman-Cowger VH; The Emmes Company, Rockville, Maryland.
Source: JAMA network open [JAMA Netw Open] 2024 Aug 01; Vol. 7 (8), pp. e2429443. Date of Electronic Publication: 2024 Aug 01.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural; Consensus Statement
Journal Info: Publisher: American Medical Association Country of Publication: United States NLM ID: 101729235 Publication Model: Electronic Cited Medium: Internet ISSN: 2574-3805 (Electronic) Linking ISSN: 25743805 NLM ISO Abbreviation: JAMA Netw Open Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Assessing Psychosocial Risk and Resilience to Support Readiness for Gene Therapy in Sickle Cell Disease: A Consensus Statement.
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  Data: <searchLink fieldCode="AU" term="%22Hardy+SJ%22">Hardy SJ</searchLink>; Center for Cancer and Blood Disorders, Children's National Hospital, Washington, DC.; Departments of Pediatrics and Psychiatry and Behavioral Sciences, George Washington University School of Medicine and Health Sciences, Washington, DC.<br /><searchLink fieldCode="AU" term="%22Crosby+LE%22">Crosby LE</searchLink>; Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, Ohio.; Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.<br /><searchLink fieldCode="AU" term="%22Porter+JS%22">Porter JS</searchLink>; Department of Psychology and Biobehavioral Sciences, St Jude Children's Research Hospital, Memphis, Tennessee.<br /><searchLink fieldCode="AU" term="%22Sil+S%22">Sil S</searchLink>; Department of Pediatrics, Emory University School of Medicine, Atlanta, Georgia.; Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, Georgia.<br /><searchLink fieldCode="AU" term="%22Valrie+CR%22">Valrie CR</searchLink>; Department of Psychology, Virginia Commonwealth University, Richmond, Virginia.<br /><searchLink fieldCode="AU" term="%22Jonassaint+CR%22">Jonassaint CR</searchLink>; Department of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania.<br /><searchLink fieldCode="AU" term="%22Bediako+SM%22">Bediako SM</searchLink>; Center for the Advancement of Science Leadership and Culture, Howard Hughes Medical Institute, Chevy Chase, Maryland.<br /><searchLink fieldCode="AU" term="%22Andrews+C%22">Andrews C</searchLink>; Sickle Champions Men's Action Network, Atlanta, Georgia.<br /><searchLink fieldCode="AU" term="%22Rivera+M%22">Rivera M</searchLink>; Sickle Cell Community Consortium, Cumming, Georgia.<br /><searchLink fieldCode="AU" term="%22Woolford+T%22">Woolford T</searchLink>; Sickle Cell Reproductive Health Education Directive, Baltimore, Maryland.<br /><searchLink fieldCode="AU" term="%22Coleman-Cowger+VH%22">Coleman-Cowger VH</searchLink>; The Emmes Company, Rockville, Maryland.
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  Data: <searchLink fieldCode="JN" term="%22101729235%22">JAMA network open</searchLink> [JAMA Netw Open] 2024 Aug 01; Vol. 7 (8), pp. e2429443. <i>Date of Electronic Publication: </i>2024 Aug 01.
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  Data: Journal Article; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural; Consensus Statement
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22American+Medical+Association%22">American Medical Association </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101729235 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2574-3805 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2225743805%22">25743805 </searchLink><i>NLM ISO Abbreviation: </i>JAMA Netw Open <i>Subsets: </i>MEDLINE
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