Patient-reported disease burden in the Accelerate Clinical Trials in Charcot-Marie-Tooth Disease Study.
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| Title: | Patient-reported disease burden in the Accelerate Clinical Trials in Charcot-Marie-Tooth Disease Study. |
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| Authors: | Rehbein T; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Purks J; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Dilek N; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Behrens-Spraggins S; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Sowden JE; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Eichinger KJ; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Burns J; Sydney School of Health Sciences, University of Sydney, Sydney, Australia., Pareyson D; Unit of Rare Neurological Diseases, Department of Clinical Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Scherer SS; Department of Neurology, University of Pennsylvania, Perelman School of Medicine, Philadelphia, Pennsylvania, USA., Reilly MM; Centre for Neuromuscular Diseases, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology, University College of London, London, UK., Shy ME; Department of Neurology, University of Iowa, Carver School of Medicine, Iowa City, Iowa, USA., McDermott MP; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.; Department of Biostatistics and Computational Biology, University of Rochester School of Medicine, Rochester, New York, USA.; The Center for Health and Technology, University of Rochester School of Medicine, Rochester, New York, USA., Heatwole CR; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.; The Center for Health and Technology, University of Rochester School of Medicine, Rochester, New York, USA., Herrmann DN; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA. |
| Corporate Authors: | ACT‐CMT Study Group |
| Source: | Journal of the peripheral nervous system : JPNS [J Peripher Nerv Syst] 2024 Dec; Vol. 29 (4), pp. 487-493. Date of Electronic Publication: 2024 Oct 10. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Wiley Country of Publication: United States NLM ID: 9704532 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1529-8027 (Electronic) Linking ISSN: 10859489 NLM ISO Abbreviation: J Peripher Nerv Syst Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1529-8027 |
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| DOI: | 10.1111/jns.12662 |
