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Patient-reported disease burden in the Accelerate Clinical Trials in Charcot-Marie-Tooth Disease Study.

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Title: Patient-reported disease burden in the Accelerate Clinical Trials in Charcot-Marie-Tooth Disease Study.
Authors: Rehbein T; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Purks J; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Dilek N; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Behrens-Spraggins S; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Sowden JE; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Eichinger KJ; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA., Burns J; Sydney School of Health Sciences, University of Sydney, Sydney, Australia., Pareyson D; Unit of Rare Neurological Diseases, Department of Clinical Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Scherer SS; Department of Neurology, University of Pennsylvania, Perelman School of Medicine, Philadelphia, Pennsylvania, USA., Reilly MM; Centre for Neuromuscular Diseases, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology, University College of London, London, UK., Shy ME; Department of Neurology, University of Iowa, Carver School of Medicine, Iowa City, Iowa, USA., McDermott MP; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.; Department of Biostatistics and Computational Biology, University of Rochester School of Medicine, Rochester, New York, USA.; The Center for Health and Technology, University of Rochester School of Medicine, Rochester, New York, USA., Heatwole CR; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.; The Center for Health and Technology, University of Rochester School of Medicine, Rochester, New York, USA., Herrmann DN; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.
Corporate Authors: ACT‐CMT Study Group
Source: Journal of the peripheral nervous system : JPNS [J Peripher Nerv Syst] 2024 Dec; Vol. 29 (4), pp. 487-493. Date of Electronic Publication: 2024 Oct 10.
Publication Type: Journal Article
Journal Info: Publisher: Wiley Country of Publication: United States NLM ID: 9704532 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1529-8027 (Electronic) Linking ISSN: 10859489 NLM ISO Abbreviation: J Peripher Nerv Syst Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Patient-reported disease burden in the Accelerate Clinical Trials in Charcot-Marie-Tooth Disease Study.
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  Data: <searchLink fieldCode="AU" term="%22Rehbein+T%22">Rehbein T</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Purks+J%22">Purks J</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Dilek+N%22">Dilek N</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Behrens-Spraggins+S%22">Behrens-Spraggins S</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Sowden+JE%22">Sowden JE</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Eichinger+KJ%22">Eichinger KJ</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Burns+J%22">Burns J</searchLink>; Sydney School of Health Sciences, University of Sydney, Sydney, Australia.<br /><searchLink fieldCode="AU" term="%22Pareyson+D%22">Pareyson D</searchLink>; Unit of Rare Neurological Diseases, Department of Clinical Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Scherer+SS%22">Scherer SS</searchLink>; Department of Neurology, University of Pennsylvania, Perelman School of Medicine, Philadelphia, Pennsylvania, USA.<br /><searchLink fieldCode="AU" term="%22Reilly+MM%22">Reilly MM</searchLink>; Centre for Neuromuscular Diseases, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology, University College of London, London, UK.<br /><searchLink fieldCode="AU" term="%22Shy+ME%22">Shy ME</searchLink>; Department of Neurology, University of Iowa, Carver School of Medicine, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22McDermott+MP%22">McDermott MP</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.; Department of Biostatistics and Computational Biology, University of Rochester School of Medicine, Rochester, New York, USA.; The Center for Health and Technology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Heatwole+CR%22">Heatwole CR</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.; The Center for Health and Technology, University of Rochester School of Medicine, Rochester, New York, USA.<br /><searchLink fieldCode="AU" term="%22Herrmann+DN%22">Herrmann DN</searchLink>; Department of Neurology, University of Rochester School of Medicine, Rochester, New York, USA.
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  Data: <searchLink fieldCode="JN" term="%229704532%22">Journal of the peripheral nervous system : JPNS</searchLink> [J Peripher Nerv Syst] 2024 Dec; Vol. 29 (4), pp. 487-493. <i>Date of Electronic Publication: </i>2024 Oct 10.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Wiley%22">Wiley </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>9704532 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1529-8027 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2210859489%22">10859489 </searchLink><i>NLM ISO Abbreviation: </i>J Peripher Nerv Syst <i>Subsets: </i>MEDLINE
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        Value: 10.1111/jns.12662
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        Text: English
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              Text: 2024 Dec
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