Quality-of-Life Measurement in Epidermolysis Bullosa. Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes and External Experts.
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| Title: | Quality-of-Life Measurement in Epidermolysis Bullosa. Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes and External Experts. |
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| Authors: | Chernyshov PV; Department of Dermatology and Venereology, National Medical University, Kyiv, Ukraine., Finlay AY; Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK., Tomas-Aragones L; Department of Psychology, University of Zaragoza, Zaragoza, Spain., Poot F; Department of Dermatology, University Hospital Erasme, Brussels, Belgium., Murrell DF; Department of Dermatology, St George Hospital, UNSW, Sydney, Australia., Pustisek N; Children's Hospital Zagreb, Zagreb, Croatia., Svensson A; Department of Dermatology and Venereology, Skane University Hospital, Malmö, Sweden., Marron SE; Department of Dermatology, University Hospital Miguel Servet, Aragon Psychodermatology Research Group (GAI+PD), Zaragoza, Spain., Sampogna F; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy., Bewley A; Barts Health NHS Trust, London, UK.; Queen Mary University, London, UK., Salavastru C; Department of Paediatric Dermatology, Colentina Clinical Hospital, 'Carol Davila' University of Medicine and Pharmacy, Bucharest, Romania., Koumaki D; Department of Dermatology and Venereology, University Hospital of Heraklion, Crete, Greece., Suru A; Department of Paediatric Dermatology, Colentina Clinical Hospital, 'Carol Davila' University of Medicine and Pharmacy, Bucharest, Romania., Yordanova IA; Department of Dermatology and Venereology, 'Dr. Georgi Stranski' University Hospital, Medical University of Pleven, Pleven, Bulgaria.; Epidermolysis Bullosa Expert Center, Pleven, Bulgaria., Zemskov S; Department of General Surgery, Bogomolets National Medical University, Kyiv, Ukraine., Tsymbaliuk R; Department of General Surgery, Bogomolets National Medical University, Kyiv, Ukraine., Ostapko O; Department of Pediatric and Preventive Dentistry, Bogomolets National Medical University, Kyiv, Ukraine., Augustin M; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany., Abeni D; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy., Szepietowski JC; Faculty of Medicine, Wroclaw University of Science and Technology, Wroclaw, Poland., Jemec GB; Department of Dermatology, Zealand University Hospital, Roskilde, Denmark. |
| Source: | International journal of dermatology [Int J Dermatol] 2025 Sep; Vol. 64 (9), pp. 1546-1557. Date of Electronic Publication: 2025 Jan 29. |
| Publication Type: | Journal Article; Practice Guideline; Review |
| Journal Info: | Publisher: Blackwell Science Country of Publication: England NLM ID: 0243704 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-4632 (Electronic) Linking ISSN: 00119059 NLM ISO Abbreviation: Int J Dermatol Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1365-4632 |
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| DOI: | 10.1111/ijd.17668 |
