Quality-of-Life Measurement in Epidermolysis Bullosa. Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes and External Experts.
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| Title: | Quality-of-Life Measurement in Epidermolysis Bullosa. Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes and External Experts. |
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| Authors: | Chernyshov PV; Department of Dermatology and Venereology, National Medical University, Kyiv, Ukraine., Finlay AY; Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK., Tomas-Aragones L; Department of Psychology, University of Zaragoza, Zaragoza, Spain., Poot F; Department of Dermatology, University Hospital Erasme, Brussels, Belgium., Murrell DF; Department of Dermatology, St George Hospital, UNSW, Sydney, Australia., Pustisek N; Children's Hospital Zagreb, Zagreb, Croatia., Svensson A; Department of Dermatology and Venereology, Skane University Hospital, Malmö, Sweden., Marron SE; Department of Dermatology, University Hospital Miguel Servet, Aragon Psychodermatology Research Group (GAI+PD), Zaragoza, Spain., Sampogna F; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy., Bewley A; Barts Health NHS Trust, London, UK.; Queen Mary University, London, UK., Salavastru C; Department of Paediatric Dermatology, Colentina Clinical Hospital, 'Carol Davila' University of Medicine and Pharmacy, Bucharest, Romania., Koumaki D; Department of Dermatology and Venereology, University Hospital of Heraklion, Crete, Greece., Suru A; Department of Paediatric Dermatology, Colentina Clinical Hospital, 'Carol Davila' University of Medicine and Pharmacy, Bucharest, Romania., Yordanova IA; Department of Dermatology and Venereology, 'Dr. Georgi Stranski' University Hospital, Medical University of Pleven, Pleven, Bulgaria.; Epidermolysis Bullosa Expert Center, Pleven, Bulgaria., Zemskov S; Department of General Surgery, Bogomolets National Medical University, Kyiv, Ukraine., Tsymbaliuk R; Department of General Surgery, Bogomolets National Medical University, Kyiv, Ukraine., Ostapko O; Department of Pediatric and Preventive Dentistry, Bogomolets National Medical University, Kyiv, Ukraine., Augustin M; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany., Abeni D; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy., Szepietowski JC; Faculty of Medicine, Wroclaw University of Science and Technology, Wroclaw, Poland., Jemec GB; Department of Dermatology, Zealand University Hospital, Roskilde, Denmark. |
| Source: | International journal of dermatology [Int J Dermatol] 2025 Sep; Vol. 64 (9), pp. 1546-1557. Date of Electronic Publication: 2025 Jan 29. |
| Publication Type: | Journal Article; Practice Guideline; Review |
| Journal Info: | Publisher: Blackwell Science Country of Publication: England NLM ID: 0243704 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-4632 (Electronic) Linking ISSN: 00119059 NLM ISO Abbreviation: Int J Dermatol Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 39878243 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Quality-of-Life Measurement in Epidermolysis Bullosa. Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes and External Experts. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Chernyshov+PV%22">Chernyshov PV</searchLink>; Department of Dermatology and Venereology, National Medical University, Kyiv, Ukraine.<br /><searchLink fieldCode="AU" term="%22Finlay+AY%22">Finlay AY</searchLink>; Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK.<br /><searchLink fieldCode="AU" term="%22Tomas-Aragones+L%22">Tomas-Aragones L</searchLink>; Department of Psychology, University of Zaragoza, Zaragoza, Spain.<br /><searchLink fieldCode="AU" term="%22Poot+F%22">Poot F</searchLink>; Department of Dermatology, University Hospital Erasme, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Murrell+DF%22">Murrell DF</searchLink>; Department of Dermatology, St George Hospital, UNSW, Sydney, Australia.<br /><searchLink fieldCode="AU" term="%22Pustisek+N%22">Pustisek N</searchLink>; Children's Hospital Zagreb, Zagreb, Croatia.<br /><searchLink fieldCode="AU" term="%22Svensson+A%22">Svensson A</searchLink>; Department of Dermatology and Venereology, Skane University Hospital, Malmö, Sweden.<br /><searchLink fieldCode="AU" term="%22Marron+SE%22">Marron SE</searchLink>; Department of Dermatology, University Hospital Miguel Servet, Aragon Psychodermatology Research Group (GAI+PD), Zaragoza, Spain.<br /><searchLink fieldCode="AU" term="%22Sampogna+F%22">Sampogna F</searchLink>; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Bewley+A%22">Bewley A</searchLink>; Barts Health NHS Trust, London, UK.; Queen Mary University, London, UK.<br /><searchLink fieldCode="AU" term="%22Salavastru+C%22">Salavastru C</searchLink>; Department of Paediatric Dermatology, Colentina Clinical Hospital, 'Carol Davila' University of Medicine and Pharmacy, Bucharest, Romania.<br /><searchLink fieldCode="AU" term="%22Koumaki+D%22">Koumaki D</searchLink>; Department of Dermatology and Venereology, University Hospital of Heraklion, Crete, Greece.<br /><searchLink fieldCode="AU" term="%22Suru+A%22">Suru A</searchLink>; Department of Paediatric Dermatology, Colentina Clinical Hospital, 'Carol Davila' University of Medicine and Pharmacy, Bucharest, Romania.<br /><searchLink fieldCode="AU" term="%22Yordanova+IA%22">Yordanova IA</searchLink>; Department of Dermatology and Venereology, 'Dr. Georgi Stranski' University Hospital, Medical University of Pleven, Pleven, Bulgaria.; Epidermolysis Bullosa Expert Center, Pleven, Bulgaria.<br /><searchLink fieldCode="AU" term="%22Zemskov+S%22">Zemskov S</searchLink>; Department of General Surgery, Bogomolets National Medical University, Kyiv, Ukraine.<br /><searchLink fieldCode="AU" term="%22Tsymbaliuk+R%22">Tsymbaliuk R</searchLink>; Department of General Surgery, Bogomolets National Medical University, Kyiv, Ukraine.<br /><searchLink fieldCode="AU" term="%22Ostapko+O%22">Ostapko O</searchLink>; Department of Pediatric and Preventive Dentistry, Bogomolets National Medical University, Kyiv, Ukraine.<br /><searchLink fieldCode="AU" term="%22Augustin+M%22">Augustin M</searchLink>; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Abeni+D%22">Abeni D</searchLink>; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Szepietowski+JC%22">Szepietowski JC</searchLink>; Faculty of Medicine, Wroclaw University of Science and Technology, Wroclaw, Poland.<br /><searchLink fieldCode="AU" term="%22Jemec+GB%22">Jemec GB</searchLink>; Department of Dermatology, Zealand University Hospital, Roskilde, Denmark. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%220243704%22">International journal of dermatology</searchLink> [Int J Dermatol] 2025 Sep; Vol. 64 (9), pp. 1546-1557. <i>Date of Electronic Publication: </i>2025 Jan 29. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article; Practice Guideline; Review – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Blackwell+Science%22">Blackwell Science </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>0243704 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1365-4632 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2200119059%22">00119059 </searchLink><i>NLM ISO Abbreviation: </i>Int J Dermatol <i>Subsets: </i>MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=39878243 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/ijd.17668 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 1546 Titles: – TitleFull: Quality-of-Life Measurement in Epidermolysis Bullosa. Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes and External Experts. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Chernyshov PV – PersonEntity: Name: NameFull: Finlay AY – PersonEntity: Name: NameFull: Tomas-Aragones L – PersonEntity: Name: NameFull: Poot F – PersonEntity: Name: NameFull: Murrell DF – PersonEntity: Name: NameFull: Pustisek N – PersonEntity: Name: NameFull: Svensson A – PersonEntity: Name: NameFull: Marron SE – PersonEntity: Name: NameFull: Sampogna F – PersonEntity: Name: NameFull: Bewley A – PersonEntity: Name: NameFull: Salavastru C – PersonEntity: Name: NameFull: Koumaki D – PersonEntity: Name: NameFull: Suru A – PersonEntity: Name: NameFull: Yordanova IA – PersonEntity: Name: NameFull: Zemskov S – PersonEntity: Name: NameFull: Tsymbaliuk R – PersonEntity: Name: NameFull: Ostapko O – PersonEntity: Name: NameFull: Augustin M – PersonEntity: Name: NameFull: Abeni D – PersonEntity: Name: NameFull: Szepietowski JC – PersonEntity: Name: NameFull: Jemec GB IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 09 Text: 2025 Sep Type: published Y: 2025 Identifiers: – Type: issn-electronic Value: 1365-4632 Numbering: – Type: volume Value: 64 – Type: issue Value: 9 Titles: – TitleFull: International journal of dermatology Type: main |
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