Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease.

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Title: Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease.
Authors: Daemen MM; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands., Duits AA; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.; Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands., van der Meer LB; Department of Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands., Andriessen RL; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands., Veenhuizen RB; Huntington Expert Center Atlant, Apeldoorn, The Netherlands., Wassenberg R; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands., Peeters T; Huntington Expert Center Land van Horne, Weert, The Netherlands., de Jager L; Huntington Expert Center Topaz Overduin, Katwijk, The Netherlands., Oosterloo M; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands.
Source: Journal of Huntington's disease [J Huntingtons Dis] 2025 Feb; Vol. 14 (1), pp. 93-102. Date of Electronic Publication: 2024 Dec 19.
Publication Type: Journal Article
Journal Info: Publisher: SAGE Publications Country of Publication: United States NLM ID: 101589965 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1879-6400 (Electronic) Linking ISSN: 18796397 NLM ISO Abbreviation: J Huntingtons Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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ISSN:1879-6400
DOI:10.1177/18796397241304333