Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease.

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Title: Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease.
Authors: Daemen MM; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands., Duits AA; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.; Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands., van der Meer LB; Department of Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands., Andriessen RL; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands., Veenhuizen RB; Huntington Expert Center Atlant, Apeldoorn, The Netherlands., Wassenberg R; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands., Peeters T; Huntington Expert Center Land van Horne, Weert, The Netherlands., de Jager L; Huntington Expert Center Topaz Overduin, Katwijk, The Netherlands., Oosterloo M; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands.
Source: Journal of Huntington's disease [J Huntingtons Dis] 2025 Feb; Vol. 14 (1), pp. 93-102. Date of Electronic Publication: 2024 Dec 19.
Publication Type: Journal Article
Journal Info: Publisher: SAGE Publications Country of Publication: United States NLM ID: 101589965 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1879-6400 (Electronic) Linking ISSN: 18796397 NLM ISO Abbreviation: J Huntingtons Dis Subsets: MEDLINE
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  Data: Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease.
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  Data: <searchLink fieldCode="AU" term="%22Daemen+MM%22">Daemen MM</searchLink>; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Duits+AA%22">Duits AA</searchLink>; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.; Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22van+der+Meer+LB%22">van der Meer LB</searchLink>; Department of Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Andriessen+RL%22">Andriessen RL</searchLink>; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Veenhuizen+RB%22">Veenhuizen RB</searchLink>; Huntington Expert Center Atlant, Apeldoorn, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Wassenberg+R%22">Wassenberg R</searchLink>; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Peeters+T%22">Peeters T</searchLink>; Huntington Expert Center Land van Horne, Weert, The Netherlands.<br /><searchLink fieldCode="AU" term="%22de+Jager+L%22">de Jager L</searchLink>; Huntington Expert Center Topaz Overduin, Katwijk, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Oosterloo+M%22">Oosterloo M</searchLink>; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands.
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  Data: <searchLink fieldCode="JN" term="%22101589965%22">Journal of Huntington's disease</searchLink> [J Huntingtons Dis] 2025 Feb; Vol. 14 (1), pp. 93-102. <i>Date of Electronic Publication: </i>2024 Dec 19.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22SAGE+Publications%22">SAGE Publications </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101589965 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1879-6400 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2218796397%22">18796397 </searchLink><i>NLM ISO Abbreviation: </i>J Huntingtons Dis <i>Subsets: </i>MEDLINE
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        Value: 10.1177/18796397241304333
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        Text: English
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              Text: 2025 Feb
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