Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease.
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| Title: | Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease. |
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| Authors: | Daemen MM; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands., Duits AA; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.; Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands., van der Meer LB; Department of Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands., Andriessen RL; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands., Veenhuizen RB; Huntington Expert Center Atlant, Apeldoorn, The Netherlands., Wassenberg R; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands., Peeters T; Huntington Expert Center Land van Horne, Weert, The Netherlands., de Jager L; Huntington Expert Center Topaz Overduin, Katwijk, The Netherlands., Oosterloo M; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands. |
| Source: | Journal of Huntington's disease [J Huntingtons Dis] 2025 Feb; Vol. 14 (1), pp. 93-102. Date of Electronic Publication: 2024 Dec 19. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: SAGE Publications Country of Publication: United States NLM ID: 101589965 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1879-6400 (Electronic) Linking ISSN: 18796397 NLM ISO Abbreviation: J Huntingtons Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 39973392 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Daemen+MM%22">Daemen MM</searchLink>; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Duits+AA%22">Duits AA</searchLink>; Department of Psychiatry and Neuropsychology, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.; Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22van+der+Meer+LB%22">van der Meer LB</searchLink>; Department of Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Andriessen+RL%22">Andriessen RL</searchLink>; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Veenhuizen+RB%22">Veenhuizen RB</searchLink>; Huntington Expert Center Atlant, Apeldoorn, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Wassenberg+R%22">Wassenberg R</searchLink>; Department of Medical Psychology, Maastricht University Medical Center, Maastricht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Peeters+T%22">Peeters T</searchLink>; Huntington Expert Center Land van Horne, Weert, The Netherlands.<br /><searchLink fieldCode="AU" term="%22de+Jager+L%22">de Jager L</searchLink>; Huntington Expert Center Topaz Overduin, Katwijk, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Oosterloo+M%22">Oosterloo M</searchLink>; Department of Neurology, Mental Health and Neuroscience Research Institute, Maastricht University Medical Center, Maastricht, The Netherlands. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22101589965%22">Journal of Huntington's disease</searchLink> [J Huntingtons Dis] 2025 Feb; Vol. 14 (1), pp. 93-102. <i>Date of Electronic Publication: </i>2024 Dec 19. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22SAGE+Publications%22">SAGE Publications </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101589965 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1879-6400 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2218796397%22">18796397 </searchLink><i>NLM ISO Abbreviation: </i>J Huntingtons Dis <i>Subsets: </i>MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=39973392 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1177/18796397241304333 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 93 Titles: – TitleFull: Through their eyes: A retrospective mixed-methods study on the experiences and support needs of children growing up with a parent with Huntington's disease. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Daemen MM – PersonEntity: Name: NameFull: Duits AA – PersonEntity: Name: NameFull: van der Meer LB – PersonEntity: Name: NameFull: Andriessen RL – PersonEntity: Name: NameFull: Veenhuizen RB – PersonEntity: Name: NameFull: Wassenberg R – PersonEntity: Name: NameFull: Peeters T – PersonEntity: Name: NameFull: de Jager L – PersonEntity: Name: NameFull: Oosterloo M IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 02 Text: 2025 Feb Type: published Y: 2025 Identifiers: – Type: issn-electronic Value: 1879-6400 Numbering: – Type: volume Value: 14 – Type: issue Value: 1 Titles: – TitleFull: Journal of Huntington's disease Type: main |
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