The cost of the diagnostic odyssey of patients with suspected rare diseases.
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| Title: | The cost of the diagnostic odyssey of patients with suspected rare diseases. |
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| Authors: | Glaubitz R; Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany. rick.glaubitz@ukdd.de., Heinrich L; Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany., Tesch F; Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany., Seifert M; Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany., Reber KC; AOK Nordost. Die Gesundheitskasse, Health Services Management, Berlin, Germany., Marschall U; Department of Medicine and Health Services Research, BARMER Health Insurance, Wuppertal, Germany., Schmitt J; Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany., Müller G; Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany. |
| Source: | Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 May 10; Vol. 20 (1), pp. 222. Date of Electronic Publication: 2025 May 10. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1750-1172 |
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| DOI: | 10.1186/s13023-025-03751-y |
