European Reference Network (ERN) ReCONNET methodology for the cross-cultural adaptation of instruments for research and care in the context of rare connective tissue diseases (CROSSADAPT).
Saved in:
| Title: | European Reference Network (ERN) ReCONNET methodology for the cross-cultural adaptation of instruments for research and care in the context of rare connective tissue diseases (CROSSADAPT). |
|---|---|
| Authors: | Arnaud L; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France. Laurent.arnaud@chru-strasbourg.fr., Sander O; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany., Rednic S; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Mertz P; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France.; Department of Internal Medicine, National Reference Center for Autoinflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), Tenon Hospital, APHP, Paris, France., Faria R; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Crisafulli F; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy., Silva-Ribeiro S; Porto, Portugal., Kawka L; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Sztejkowski C; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Düsing C; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany., Rose T; Klinik Für Rheumatologie Und Klinische Immunologie, Charité Universitätsmedizin Berlin, Charité Platz 1, 10117, Berlin, Germany., Lamas A; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Vasconcelos C; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Fontana G; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy., Semeraro P; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy., Neagu T; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Resteu M; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Damian L; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Pamfil C; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Bucsa C; ASPOR Association of Romanian Relapsing Polychondritis Patients &, Iuliu Hațieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania., Matthews LJ; Relapsing Polychondritis Awareness & Support, (Relapsingpolychondritis.Org), Worcester, UK., Talarico R; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy., Mosca M; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy., Turchetti G; Institute of Management, Scuola Superiore Sant'Anna, 56127, Pisa, Italy., Thibault T; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France., Devilliers H; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France. |
| Source: | Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 May 15; Vol. 20 (1), pp. 230. Date of Electronic Publication: 2025 May 15. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
|
Full text is not displayed to guests.
Login for full access.
|
|
| ISSN: | 1750-1172 |
|---|---|
| DOI: | 10.1186/s13023-025-03674-8 |
