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European Reference Network (ERN) ReCONNET methodology for the cross-cultural adaptation of instruments for research and care in the context of rare connective tissue diseases (CROSSADAPT).

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Title: European Reference Network (ERN) ReCONNET methodology for the cross-cultural adaptation of instruments for research and care in the context of rare connective tissue diseases (CROSSADAPT).
Authors: Arnaud L; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France. Laurent.arnaud@chru-strasbourg.fr., Sander O; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany., Rednic S; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Mertz P; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France.; Department of Internal Medicine, National Reference Center for Autoinflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), Tenon Hospital, APHP, Paris, France., Faria R; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Crisafulli F; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy., Silva-Ribeiro S; Porto, Portugal., Kawka L; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Sztejkowski C; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France., Düsing C; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany., Rose T; Klinik Für Rheumatologie Und Klinische Immunologie, Charité Universitätsmedizin Berlin, Charité Platz 1, 10117, Berlin, Germany., Lamas A; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Vasconcelos C; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal., Fontana G; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy., Semeraro P; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy., Neagu T; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Resteu M; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Damian L; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Pamfil C; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania., Bucsa C; ASPOR Association of Romanian Relapsing Polychondritis Patients &, Iuliu Hațieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania., Matthews LJ; Relapsing Polychondritis Awareness & Support, (Relapsingpolychondritis.Org), Worcester, UK., Talarico R; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy., Mosca M; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy., Turchetti G; Institute of Management, Scuola Superiore Sant'Anna, 56127, Pisa, Italy., Thibault T; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France., Devilliers H; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 May 15; Vol. 20 (1), pp. 230. Date of Electronic Publication: 2025 May 15.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: European Reference Network (ERN) ReCONNET methodology for the cross-cultural adaptation of instruments for research and care in the context of rare connective tissue diseases (CROSSADAPT).
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  Data: <searchLink fieldCode="AU" term="%22Arnaud+L%22">Arnaud L</searchLink>; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France. Laurent.arnaud@chru-strasbourg.fr.<br /><searchLink fieldCode="AU" term="%22Sander+O%22">Sander O</searchLink>; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany.<br /><searchLink fieldCode="AU" term="%22Rednic+S%22">Rednic S</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Mertz+P%22">Mertz P</searchLink>; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France.; Department of Internal Medicine, National Reference Center for Autoinflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), Tenon Hospital, APHP, Paris, France.<br /><searchLink fieldCode="AU" term="%22Faria+R%22">Faria R</searchLink>; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Crisafulli+F%22">Crisafulli F</searchLink>; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Silva-Ribeiro+S%22">Silva-Ribeiro S</searchLink>; Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Kawka+L%22">Kawka L</searchLink>; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France.<br /><searchLink fieldCode="AU" term="%22Sztejkowski+C%22">Sztejkowski C</searchLink>; Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France.<br /><searchLink fieldCode="AU" term="%22Düsing+C%22">Düsing C</searchLink>; Department for Rheumatology and Hiller Research Centre for Rheumatology, University Hospital, Düsseldorf, Germany.<br /><searchLink fieldCode="AU" term="%22Rose+T%22">Rose T</searchLink>; Klinik Für Rheumatologie Und Klinische Immunologie, Charité Universitätsmedizin Berlin, Charité Platz 1, 10117, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Lamas+A%22">Lamas A</searchLink>; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Vasconcelos+C%22">Vasconcelos C</searchLink>; Unidade de Imunologia Clínica, Hospital de Santo António, Unidade Local de Saúde Santo António, Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Fontana+G%22">Fontana G</searchLink>; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Semeraro+P%22">Semeraro P</searchLink>; Rheumatology and Clinical Immunology Unit, ASST Spedali Civili of Brescia, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Neagu+T%22">Neagu T</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Resteu+M%22">Resteu M</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Damian+L%22">Damian L</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Pamfil+C%22">Pamfil C</searchLink>; Department of Rheumatology, Emergency County Teaching Hospital, University of Medicine and Pharmacy Iuliu Hatieganu, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Bucsa+C%22">Bucsa C</searchLink>; ASPOR Association of Romanian Relapsing Polychondritis Patients &, Iuliu Hațieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Matthews+LJ%22">Matthews LJ</searchLink>; Relapsing Polychondritis Awareness & Support, (Relapsingpolychondritis.Org), Worcester, UK.<br /><searchLink fieldCode="AU" term="%22Talarico+R%22">Talarico R</searchLink>; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy.<br /><searchLink fieldCode="AU" term="%22Mosca+M%22">Mosca M</searchLink>; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy.<br /><searchLink fieldCode="AU" term="%22Turchetti+G%22">Turchetti G</searchLink>; Institute of Management, Scuola Superiore Sant'Anna, 56127, Pisa, Italy.<br /><searchLink fieldCode="AU" term="%22Thibault+T%22">Thibault T</searchLink>; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France.<br /><searchLink fieldCode="AU" term="%22Devilliers+H%22">Devilliers H</searchLink>; Internal Medicine and Systemic Diseases Unit, University Hospital Centre Dijon, Dijon, France.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2025 May 15; Vol. 20 (1), pp. 230. <i>Date of Electronic Publication: </i>2025 May 15.
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