Validation of the self-report quantified Tuberous Sclerosis Complex-Associated Neuropsyciatric Disorders Checklist (TAND-SQ).
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| Title: | Validation of the self-report quantified Tuberous Sclerosis Complex-Associated Neuropsyciatric Disorders Checklist (TAND-SQ). |
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| Authors: | Chambers N; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa. nola.chambers@uct.ac.za., Heunis TM; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium., Gardner-Lubbe S; Department of Statistics and Actuarial Sciences, MuViSU (Centre for Multi-Dimensional Data Visualisation), Stellenbosch University, Stellenbosch, South Africa., Capal JK; Department of Neurology, University of Rochester Medical Center, Rochester, NY, USA., Bissell S; School of Psychology, University of Birmingham, Birmingham, UK., Byars AW; Division of Neurology, Department of Pediatrics, Cincinnati Children'S Hospital Medical Center/University of Cincinnati College of Medicine, Cincinnati, OH, USA., Cukier S; Department of Psychopathology and Mental Health, Pedro de Elizalde Hospital, Buenos Aires, Argentina., Davis PE; Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA., Flinn J; TSC Canada, Mississauga, ON, Canada., Gipson TT; Department of Pediatrics, The University of Tennessee Health Sciences Center, Memphis, TN, USA.; Le Bonheur Children's Hospital and The Boling Center for Developmental Disabilities, Memphis, TN, USA., Kingswood JC; Department of Clinical Genetics, St George's University Hospitals, London, UK.; Sussex Renal Unit, The Royal Sussex County Hospital, Brighton, UK., Kumm AJ; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa., Schoeters E; Be-TSC, Mortsel, Belgium.; TSCi, Mortsel, Belgium., Smith C; TSC Alliance, Silver Spring, MD, USA., Srivastava S; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa.; Society of Parents of Children with Autistic Disorders (SOPAN), Maharashtra, India., Takei M; Japanese Society of Tuberous Sclerosis Complex, Family Network, Tokyo, Japan., Vanclooster S; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium.; Centre for Medical Genetics, Antwerp University Hospital, Antwerp, Belgium., van Eeghen AM; Emma Children'S Hospital, Amsterdam University Medical Centers, Amsterdam, The Netherlands.; TAND Expert Centre, 'sHeeren Loo, Noordwijk, The Netherlands., Waltereit R; Department of Psychiatry, Psychotherapy and Preventive Medicine, Ruhr University Bochum, Bochum, Germany.; Child and Adolescent Psychiatry, LWL-Klinikum Marsberg, Marsberg, Germany., Krueger DA; TSC Clinic, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; Division of Neurology, Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA., Sahin M; Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.; Rosamund Stone Zander Translational Neuroscience Center, Boston Children'S Hospital, Boston, MA, USA., De Waele L; Department of Paediatric Neurology, University Hospitals Leuven, Leuven, Belgium.; Department of Development and Regeneration, KU Leuven, Leuven, Belgium., Jansen AC; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium.; Department of Pediatrics, Koningin Mathilde Moeder- en Kindcentrum, Antwerp University Hospital, Antwerp, Belgium.; Department of Translational Neurosciences, University of Antwerp, Antwerp, Belgium., de Vries PJ; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa. |
| Source: | Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Jun 13; Vol. 20 (1), pp. 304. Date of Electronic Publication: 2025 Jun 13. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1750-1172 |
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| DOI: | 10.1186/s13023-025-03642-2 |
