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Validation of the self-report quantified Tuberous Sclerosis Complex-Associated Neuropsyciatric Disorders Checklist (TAND-SQ).

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Title: Validation of the self-report quantified Tuberous Sclerosis Complex-Associated Neuropsyciatric Disorders Checklist (TAND-SQ).
Authors: Chambers N; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa. nola.chambers@uct.ac.za., Heunis TM; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium., Gardner-Lubbe S; Department of Statistics and Actuarial Sciences, MuViSU (Centre for Multi-Dimensional Data Visualisation), Stellenbosch University, Stellenbosch, South Africa., Capal JK; Department of Neurology, University of Rochester Medical Center, Rochester, NY, USA., Bissell S; School of Psychology, University of Birmingham, Birmingham, UK., Byars AW; Division of Neurology, Department of Pediatrics, Cincinnati Children'S Hospital Medical Center/University of Cincinnati College of Medicine, Cincinnati, OH, USA., Cukier S; Department of Psychopathology and Mental Health, Pedro de Elizalde Hospital, Buenos Aires, Argentina., Davis PE; Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA., Flinn J; TSC Canada, Mississauga, ON, Canada., Gipson TT; Department of Pediatrics, The University of Tennessee Health Sciences Center, Memphis, TN, USA.; Le Bonheur Children's Hospital and The Boling Center for Developmental Disabilities, Memphis, TN, USA., Kingswood JC; Department of Clinical Genetics, St George's University Hospitals, London, UK.; Sussex Renal Unit, The Royal Sussex County Hospital, Brighton, UK., Kumm AJ; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa., Schoeters E; Be-TSC, Mortsel, Belgium.; TSCi, Mortsel, Belgium., Smith C; TSC Alliance, Silver Spring, MD, USA., Srivastava S; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa.; Society of Parents of Children with Autistic Disorders (SOPAN), Maharashtra, India., Takei M; Japanese Society of Tuberous Sclerosis Complex, Family Network, Tokyo, Japan., Vanclooster S; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium.; Centre for Medical Genetics, Antwerp University Hospital, Antwerp, Belgium., van Eeghen AM; Emma Children'S Hospital, Amsterdam University Medical Centers, Amsterdam, The Netherlands.; TAND Expert Centre, 'sHeeren Loo, Noordwijk, The Netherlands., Waltereit R; Department of Psychiatry, Psychotherapy and Preventive Medicine, Ruhr University Bochum, Bochum, Germany.; Child and Adolescent Psychiatry, LWL-Klinikum Marsberg, Marsberg, Germany., Krueger DA; TSC Clinic, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; Division of Neurology, Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA., Sahin M; Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.; Rosamund Stone Zander Translational Neuroscience Center, Boston Children'S Hospital, Boston, MA, USA., De Waele L; Department of Paediatric Neurology, University Hospitals Leuven, Leuven, Belgium.; Department of Development and Regeneration, KU Leuven, Leuven, Belgium., Jansen AC; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium.; Department of Pediatrics, Koningin Mathilde Moeder- en Kindcentrum, Antwerp University Hospital, Antwerp, Belgium.; Department of Translational Neurosciences, University of Antwerp, Antwerp, Belgium., de Vries PJ; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Jun 13; Vol. 20 (1), pp. 304. Date of Electronic Publication: 2025 Jun 13.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Validation of the self-report quantified Tuberous Sclerosis Complex-Associated Neuropsyciatric Disorders Checklist (TAND-SQ).
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  Data: <searchLink fieldCode="AU" term="%22Chambers+N%22">Chambers N</searchLink>; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa. nola.chambers@uct.ac.za.<br /><searchLink fieldCode="AU" term="%22Heunis+TM%22">Heunis TM</searchLink>; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Gardner-Lubbe+S%22">Gardner-Lubbe S</searchLink>; Department of Statistics and Actuarial Sciences, MuViSU (Centre for Multi-Dimensional Data Visualisation), Stellenbosch University, Stellenbosch, South Africa.<br /><searchLink fieldCode="AU" term="%22Capal+JK%22">Capal JK</searchLink>; Department of Neurology, University of Rochester Medical Center, Rochester, NY, USA.<br /><searchLink fieldCode="AU" term="%22Bissell+S%22">Bissell S</searchLink>; School of Psychology, University of Birmingham, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Byars+AW%22">Byars AW</searchLink>; Division of Neurology, Department of Pediatrics, Cincinnati Children'S Hospital Medical Center/University of Cincinnati College of Medicine, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Cukier+S%22">Cukier S</searchLink>; Department of Psychopathology and Mental Health, Pedro de Elizalde Hospital, Buenos Aires, Argentina.<br /><searchLink fieldCode="AU" term="%22Davis+PE%22">Davis PE</searchLink>; Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Flinn+J%22">Flinn J</searchLink>; TSC Canada, Mississauga, ON, Canada.<br /><searchLink fieldCode="AU" term="%22Gipson+TT%22">Gipson TT</searchLink>; Department of Pediatrics, The University of Tennessee Health Sciences Center, Memphis, TN, USA.; Le Bonheur Children's Hospital and The Boling Center for Developmental Disabilities, Memphis, TN, USA.<br /><searchLink fieldCode="AU" term="%22Kingswood+JC%22">Kingswood JC</searchLink>; Department of Clinical Genetics, St George's University Hospitals, London, UK.; Sussex Renal Unit, The Royal Sussex County Hospital, Brighton, UK.<br /><searchLink fieldCode="AU" term="%22Kumm+AJ%22">Kumm AJ</searchLink>; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa.<br /><searchLink fieldCode="AU" term="%22Schoeters+E%22">Schoeters E</searchLink>; Be-TSC, Mortsel, Belgium.; TSCi, Mortsel, Belgium.<br /><searchLink fieldCode="AU" term="%22Smith+C%22">Smith C</searchLink>; TSC Alliance, Silver Spring, MD, USA.<br /><searchLink fieldCode="AU" term="%22Srivastava+S%22">Srivastava S</searchLink>; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa.; Society of Parents of Children with Autistic Disorders (SOPAN), Maharashtra, India.<br /><searchLink fieldCode="AU" term="%22Takei+M%22">Takei M</searchLink>; Japanese Society of Tuberous Sclerosis Complex, Family Network, Tokyo, Japan.<br /><searchLink fieldCode="AU" term="%22Vanclooster+S%22">Vanclooster S</searchLink>; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium.; Centre for Medical Genetics, Antwerp University Hospital, Antwerp, Belgium.<br /><searchLink fieldCode="AU" term="%22van+Eeghen+AM%22">van Eeghen AM</searchLink>; Emma Children'S Hospital, Amsterdam University Medical Centers, Amsterdam, The Netherlands.; TAND Expert Centre, 'sHeeren Loo, Noordwijk, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Waltereit+R%22">Waltereit R</searchLink>; Department of Psychiatry, Psychotherapy and Preventive Medicine, Ruhr University Bochum, Bochum, Germany.; Child and Adolescent Psychiatry, LWL-Klinikum Marsberg, Marsberg, Germany.<br /><searchLink fieldCode="AU" term="%22Krueger+DA%22">Krueger DA</searchLink>; TSC Clinic, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; Division of Neurology, Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Sahin+M%22">Sahin M</searchLink>; Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.; Rosamund Stone Zander Translational Neuroscience Center, Boston Children'S Hospital, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22De+Waele+L%22">De Waele L</searchLink>; Department of Paediatric Neurology, University Hospitals Leuven, Leuven, Belgium.; Department of Development and Regeneration, KU Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Jansen+AC%22">Jansen AC</searchLink>; Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Brussels, Belgium.; Department of Pediatrics, Koningin Mathilde Moeder- en Kindcentrum, Antwerp University Hospital, Antwerp, Belgium.; Department of Translational Neurosciences, University of Antwerp, Antwerp, Belgium.<br /><searchLink fieldCode="AU" term="%22de+Vries+PJ%22">de Vries PJ</searchLink>; Centre for Autism Research in Africa (CARA), Division of Child and Adolescent Psychiatry, University of Cape Town, 46 Sawkins Road, Rondebosch, Cape Town, 7700, South Africa.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2025 Jun 13; Vol. 20 (1), pp. 304. <i>Date of Electronic Publication: </i>2025 Jun 13.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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