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Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries.

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Title: Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries.
Authors: Moons P; University of Gothenburg, Gothenburg, Sweden philip.moons@gu.se.; KU Leuven, Leuven, Belgium.; University of Cape Town, Cape Town, South Africa., Kovacs AH; Equilibria Psychological Health, Toronto, Ontario, Canada., Goossens E; KU Leuven, Leuven, Belgium.; University of Antwerp, Antwerpen, Belgium., Luyckx K; KU Leuven, Leuven, Belgium.; University of the Free State, Bloemfontein, South Africa., Ladak L; The Aga Khan University, Karachi, Pakistan., Leye M; University of Thies Faculty of Health Sciences, Thies, Senegal., Van De Bruaene A; KU Leuven, Leuven, Belgium.; Structural and Congenital Cardiology, University Hospitals Leuven, Leuven, Belgium., Leong MC; Paediatric & Congenital Heart Centre, Institut Jantung Negara, Kuala Lumpur, Malaysia., Kaneva A; National Heart Hospital, Sofia, Bulgaria., Manso PH; University Hospital, Ribeirão Preto, Brazil., Araujo JJ; Meintegral-Clinic, Manizales, Colombia., Sasikumar N; Amrita Institute of Medical Sciences, Kochi, Kerala, India., Gabriel H; Medical University of Vienna, Vienna, Austria., Yadeta D; Internal Medicine, School of Medicine, Addis Ababa University, Addis Ababa, Eritrea., Wang JK; Pediatrics, National Taiwan University Hospital, Taipei, Taiwan., Enomoto J; Toyo University, Tokyo, Japan.; Chiba Cerebral and Cardiovascular Center, Chiba, Japan., Areias ME; University of Porto, Porto, Portugal.; Centro Hospitalar Universitário de S. João, Porto, Portugal., Kosmidis D; University General Hospital of Thessaloniki AHEPA First Cardiology Clinic, Thessaloniki, Greece., Coats L; Newcastle University, Newcastle upon Tyne, UK., Valente AM; Cardiology, Children's Hospital Boston and Women's Hospital, Boston, Massachusetts, USA., Moon JR; Samsung Medical Center, Gangnam-gu, Seoul, Republic of Korea., Ladouceur M; Cardiology, Hopital Europeen Georges Pompidou, Paris, France.; HUG, Geneva, Switzerland., Thomet C; Inselspital University Hospital Bern, Bern, Switzerland., Jackson JL; Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, Ohio, USA., Sandberg C; Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden., Callus E; IRCCS Policlinico San Donato, San Donato Milanese, Lombardia, Italy.; University of Milan, Milan, Italy., Kim YY; Philadelphia Adult Congenital Heart Center, Penn Medicine and Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA., Lykkeberg B; Copenhagen University Hospital, Kobenhavn, Denmark., Alday L; Hospital de Niños, Cordoba, Argentina., Bredy C; Pediatric Cardiology, Centre Hospitalier Regional Universitaire de Montpellier, Montpellier, France., Saidi A; Cardiology, University of Florida, Gainesville, Florida, USA., Baraona Reyes F; Pontificia Universidad Católica de Chile, Santiago, Chile., Menahem S; Department of Paediatrics, Monash University, Melbourne, Victoria, Australia., de Hosson M; Department of Adult Congenital Cardiology, University Hospital Ghent, Gent, Belgium., Hlebowicz J; Lund University, Skåne University Hospital, Lund, Sweden., Christersson C; Cardiology, Medical Sciences, Uppsala, Sweden., Zaidi AN; Cardiology, Mount Sinai School of Medicine, New York, New York, USA., Johansson B; Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden., Andresen B; Oslo Universitetssykehus Intervensjonssenteret, Oslo, Norway., Ambassa JC; Clinique Medical Le Jourdain, Yaoundé, Cameroon., Mattsson E; Karolinska Institute, Stockholm, Sweden., Constantine A; Royal Brompton and Harefield Hospitals, London, UK., Amedro P; Pediatric and Congenital Cardiology, CHU de Bordeaux Hôpital Cardiologique, Pessac, France., van Melle JP; University Medical Centre Groningen, Groningen, The Netherlands., Kutty S; Johns Hopkins University, Baltimore, Maryland, USA., Ortiz L; Hospital San Juan De Dios De La Plata, Buenos Aires, Argentina., Demir F; Ege University Institute of Health Sciences, Izmir, Turkey., Khairy P; Univ Montreal, Montreal, Quebec, Canada., Windram J; Mazankowski Alberta Heart Institute, Edmonton, Alberta, Canada., Bouchardy J; HUG, Geneva, Switzerland.; Department of Cardiology and Cardiac Surgery, Lausanne University Hospital, Lausanne, Switzerland., Caruana M; Cardiology, Mater Dei Hospital, Msida, Malta., Jameson SM; Lucile Packard Children's Hospital School, Palo Alto, California, USA., Mahadevan VS; Department of Cardiology, University of California San Francisco, San Francisco, California, USA.; University of Massachusetts Chan School of Medicine, Worcester, Massachusetts, USA., McGrath LB; Oregon Health & Science University, Portland, Oregon, USA., Mwita JC; Internal Medicine, University of Botswana, Gaborone, Botswana., Van Bulck L; KU Leuven, Leuven, Belgium.; Research Foundation Flanders, FWO, Brussels, Belgium.
Corporate Authors: APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD)
Source: Heart (British Cardiac Society) [Heart] 2025 Aug 12; Vol. 111 (17), pp. 818-827. Date of Electronic Publication: 2025 Aug 12.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: BMJ Pub. Group Country of Publication: England NLM ID: 9602087 Publication Model: Electronic Cited Medium: Internet ISSN: 1468-201X (Electronic) Linking ISSN: 13556037 NLM ISO Abbreviation: Heart Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Moons+P%22">Moons P</searchLink>; University of Gothenburg, Gothenburg, Sweden philip.moons@gu.se.; KU Leuven, Leuven, Belgium.; University of Cape Town, Cape Town, South Africa.<br /><searchLink fieldCode="AU" term="%22Kovacs+AH%22">Kovacs AH</searchLink>; Equilibria Psychological Health, Toronto, Ontario, Canada.<br /><searchLink fieldCode="AU" term="%22Goossens+E%22">Goossens E</searchLink>; KU Leuven, Leuven, Belgium.; University of Antwerp, Antwerpen, Belgium.<br /><searchLink fieldCode="AU" term="%22Luyckx+K%22">Luyckx K</searchLink>; KU Leuven, Leuven, Belgium.; University of the Free State, Bloemfontein, South Africa.<br /><searchLink fieldCode="AU" term="%22Ladak+L%22">Ladak L</searchLink>; The Aga Khan University, Karachi, Pakistan.<br /><searchLink fieldCode="AU" term="%22Leye+M%22">Leye M</searchLink>; University of Thies Faculty of Health Sciences, Thies, Senegal.<br /><searchLink fieldCode="AU" term="%22Van+De+Bruaene+A%22">Van De Bruaene A</searchLink>; KU Leuven, Leuven, Belgium.; Structural and Congenital Cardiology, University Hospitals Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Leong+MC%22">Leong MC</searchLink>; Paediatric & Congenital Heart Centre, Institut Jantung Negara, Kuala Lumpur, Malaysia.<br /><searchLink fieldCode="AU" term="%22Kaneva+A%22">Kaneva A</searchLink>; National Heart Hospital, Sofia, Bulgaria.<br /><searchLink fieldCode="AU" term="%22Manso+PH%22">Manso PH</searchLink>; University Hospital, Ribeirão Preto, Brazil.<br /><searchLink fieldCode="AU" term="%22Araujo+JJ%22">Araujo JJ</searchLink>; Meintegral-Clinic, Manizales, Colombia.<br /><searchLink fieldCode="AU" term="%22Sasikumar+N%22">Sasikumar N</searchLink>; Amrita Institute of Medical Sciences, Kochi, Kerala, India.<br /><searchLink fieldCode="AU" term="%22Gabriel+H%22">Gabriel H</searchLink>; Medical University of Vienna, Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Yadeta+D%22">Yadeta D</searchLink>; Internal Medicine, School of Medicine, Addis Ababa University, Addis Ababa, Eritrea.<br /><searchLink fieldCode="AU" term="%22Wang+JK%22">Wang JK</searchLink>; Pediatrics, National Taiwan University Hospital, Taipei, Taiwan.<br /><searchLink fieldCode="AU" term="%22Enomoto+J%22">Enomoto J</searchLink>; Toyo University, Tokyo, Japan.; Chiba Cerebral and Cardiovascular Center, Chiba, Japan.<br /><searchLink fieldCode="AU" term="%22Areias+ME%22">Areias ME</searchLink>; University of Porto, Porto, Portugal.; Centro Hospitalar Universitário de S. 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Cardiology, University of Florida, Gainesville, Florida, USA.<br /><searchLink fieldCode="AU" term="%22Baraona+Reyes+F%22">Baraona Reyes F</searchLink>; Pontificia Universidad Católica de Chile, Santiago, Chile.<br /><searchLink fieldCode="AU" term="%22Menahem+S%22">Menahem S</searchLink>; Department of Paediatrics, Monash University, Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22de+Hosson+M%22">de Hosson M</searchLink>; Department of Adult Congenital Cardiology, University Hospital Ghent, Gent, Belgium.<br /><searchLink fieldCode="AU" term="%22Hlebowicz+J%22">Hlebowicz J</searchLink>; Lund University, Skåne University Hospital, Lund, Sweden.<br /><searchLink fieldCode="AU" term="%22Christersson+C%22">Christersson C</searchLink>; Cardiology, Medical Sciences, Uppsala, Sweden.<br /><searchLink fieldCode="AU" term="%22Zaidi+AN%22">Zaidi AN</searchLink>; Cardiology, Mount Sinai School of Medicine, New York, New York, USA.<br /><searchLink fieldCode="AU" term="%22Johansson+B%22">Johansson B</searchLink>; 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