Variability across versions of the self-administered ALSFRS-R: a review and call for harmonization.

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Title: Variability across versions of the self-administered ALSFRS-R: a review and call for harmonization.
Authors: Allen MD; Department of Neurology and Neurosurgery, McGill University, Montreal, Canada.; Ottawa Hospital Research Institute, Ottawa, Canada.; Division of Physical Medicine and Rehabilitation, Department of Medicine, University of Ottawa, Ottawa, Canada., Van Eijk RPA; Department of Neurology & Biostatistics, University Medical Center Utrecht, Utrecht, The Netherlands., Knox L; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK., Carlton J; Sheffield Centre for Health and Related Research (SCHARR), University of Sheffield, Sheffield, UK., Hobson E; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK., Mcdermott CJ; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK., Murray D; Academic Unit of Neurology, Trinity College Dublin, Dublin, Ireland., Berry J; Neurological Clinical Research Institute (NCRI), Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, MA, USA, and., Meyer T; Department of Neurology, Center for ALS and Other Motor Neuron Disorders, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin and Berlin Institute of Health, Berlin, Germany., Genge A; Department of Neurology and Neurosurgery, McGill University, Montreal, Canada.
Source: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2025 Nov; Vol. 26 (7-8), pp. 631-636. Date of Electronic Publication: 2025 Jun 28.
Publication Type: Journal Article; Review; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Taylor & Francis Country of Publication: England NLM ID: 101587185 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2167-9223 (Electronic) Linking ISSN: 21678421 NLM ISO Abbreviation: Amyotroph Lateral Scler Frontotemporal Degener Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:2167-9223
DOI:10.1080/21678421.2025.2522400