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Variability across versions of the self-administered ALSFRS-R: a review and call for harmonization.

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Title: Variability across versions of the self-administered ALSFRS-R: a review and call for harmonization.
Authors: Allen MD; Department of Neurology and Neurosurgery, McGill University, Montreal, Canada.; Ottawa Hospital Research Institute, Ottawa, Canada.; Division of Physical Medicine and Rehabilitation, Department of Medicine, University of Ottawa, Ottawa, Canada., Van Eijk RPA; Department of Neurology & Biostatistics, University Medical Center Utrecht, Utrecht, The Netherlands., Knox L; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK., Carlton J; Sheffield Centre for Health and Related Research (SCHARR), University of Sheffield, Sheffield, UK., Hobson E; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK., Mcdermott CJ; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK., Murray D; Academic Unit of Neurology, Trinity College Dublin, Dublin, Ireland., Berry J; Neurological Clinical Research Institute (NCRI), Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, MA, USA, and., Meyer T; Department of Neurology, Center for ALS and Other Motor Neuron Disorders, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin and Berlin Institute of Health, Berlin, Germany., Genge A; Department of Neurology and Neurosurgery, McGill University, Montreal, Canada.
Source: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2025 Nov; Vol. 26 (7-8), pp. 631-636. Date of Electronic Publication: 2025 Jun 28.
Publication Type: Journal Article; Review; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Taylor & Francis Country of Publication: England NLM ID: 101587185 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2167-9223 (Electronic) Linking ISSN: 21678421 NLM ISO Abbreviation: Amyotroph Lateral Scler Frontotemporal Degener Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Variability across versions of the self-administered ALSFRS-R: a review and call for harmonization.
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  Data: <searchLink fieldCode="AU" term="%22Allen+MD%22">Allen MD</searchLink>; Department of Neurology and Neurosurgery, McGill University, Montreal, Canada.; Ottawa Hospital Research Institute, Ottawa, Canada.; Division of Physical Medicine and Rehabilitation, Department of Medicine, University of Ottawa, Ottawa, Canada.<br /><searchLink fieldCode="AU" term="%22Van+Eijk+RPA%22">Van Eijk RPA</searchLink>; Department of Neurology & Biostatistics, University Medical Center Utrecht, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Knox+L%22">Knox L</searchLink>; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Carlton+J%22">Carlton J</searchLink>; Sheffield Centre for Health and Related Research (SCHARR), University of Sheffield, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Hobson+E%22">Hobson E</searchLink>; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Mcdermott+CJ%22">Mcdermott CJ</searchLink>; Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Murray+D%22">Murray D</searchLink>; Academic Unit of Neurology, Trinity College Dublin, Dublin, Ireland.<br /><searchLink fieldCode="AU" term="%22Berry+J%22">Berry J</searchLink>; Neurological Clinical Research Institute (NCRI), Healey & AMG Center for ALS, Massachusetts General Hospital, Boston, MA, USA, and.<br /><searchLink fieldCode="AU" term="%22Meyer+T%22">Meyer T</searchLink>; Department of Neurology, Center for ALS and Other Motor Neuron Disorders, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin and Berlin Institute of Health, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Genge+A%22">Genge A</searchLink>; Department of Neurology and Neurosurgery, McGill University, Montreal, Canada.
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  Data: <searchLink fieldCode="JN" term="%22101587185%22">Amyotrophic lateral sclerosis & frontotemporal degeneration</searchLink> [Amyotroph Lateral Scler Frontotemporal Degener] 2025 Nov; Vol. 26 (7-8), pp. 631-636. <i>Date of Electronic Publication: </i>2025 Jun 28.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Taylor+%26+Francis%22">Taylor & Francis </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101587185 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2167-9223 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2221678421%22">21678421 </searchLink><i>NLM ISO Abbreviation: </i>Amyotroph Lateral Scler Frontotemporal Degener <i>Subsets: </i>MEDLINE
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        Value: 10.1080/21678421.2025.2522400
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              Text: 2025 Nov
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