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User journeys in cross-European secondary use of health data: insights ahead of the European Health Data Space.

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Title: User journeys in cross-European secondary use of health data: insights ahead of the European Health Data Space.
Authors: Forster RB; Department of Health Registry Research and Development, Norwegian Institute of Public Health, Bergen, Norway., Alvarez EG; Biobanking and Biomolecular Resources Research Infrastructure (BBMRI-ERIC), IT department, Graz, Austria., Zucco AG; Copenhagen Health Complexity Center, Department of Public Health, University of Copenhagen, Copenhagen, Denmark., Bernal-Delgado E; Data Science for Health Services and Policy Research Group, Aragon Health Sciences Institute (IACS), Zaragoza, Spain., Diallo G; Team AHead, Bordeaux Population Health INSERM-U1219, Univ. Bordeaux, Bordeaux, France., Estupiñán-Romero F; Data Science for Health Services and Policy Research Group, Aragon Health Sciences Institute (IACS), Zaragoza, Spain., Ganna A; Institute for Molecular Medicine Finland (FIMM), HiLIFE, University of Helsinki, Helsinki, Finland.; Broad Institute of MIT and Harvard, Cambridge, MA, United States.; Analytic and Translational Genetics Unit, Massachusetts General Hospital, Boston, MA, United States., Gorman-Asal M; Team AHead, Bordeaux Population Health INSERM-U1219, Univ. Bordeaux, Bordeaux, France.; New Brunswick Institute for Research, Data and Training, University of New Brunswick, Fredericton, NB, Canada., Hilmarsen C; Norwegian Institute of Public Health, Health Data Service, Tynset, Norway., Holub P; Biobanking and Biomolecular Resources Research Infrastructure (BBMRI-ERIC), IT department, Graz, Austria.; Institute of Computer Science, Masaryk University, Brno, Czech Republic., Hoeyer K; Section for Health Services Research, Department of Public Health, University of Copenhagen, Copenhagen, Denmark., Rawat A; Team AHead, Bordeaux Population Health INSERM-U1219, Univ. Bordeaux, Bordeaux, France., Rod NH; Copenhagen Health Complexity Center, Department of Public Health, University of Copenhagen, Copenhagen, Denmark., Vuorinen AL; Institute for Molecular Medicine Finland (FIMM), HiLIFE, University of Helsinki, Helsinki, Finland.; Unit of Health Sciences, Faculty of Social Sciences, Tampere University, Tampere, Finland., Varga TV; Copenhagen Health Complexity Center, Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
Source: European journal of public health [Eur J Public Health] 2025 Sep 01; Vol. 35 (Supplement_3), pp. iii18-iii24.
Publication Type: Journal Article
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 9204966 Publication Model: Print Cited Medium: Internet ISSN: 1464-360X (Electronic) Linking ISSN: 11011262 NLM ISO Abbreviation: Eur J Public Health Subsets: MEDLINE
Database: MEDLINE Ultimate
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