Core outcome domain sets for clinical trials in epidermolysis bullosa - a COSEB protocol to achieve consensus on "what" to measure.
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| Title: | Core outcome domain sets for clinical trials in epidermolysis bullosa - a COSEB protocol to achieve consensus on "what" to measure. |
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| Authors: | Korte EWH; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., van den Akker PC; Department of Genetics, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., Kiritsi D; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.; First Department of Dermatology, Faculty of Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece., Kottner J; Charité-Universitätsmedizin Berlin, Institute of Clinical Nursing Science, Berlin, Germany., Pasmooij AMG; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.; Dutch Medicines Evaluation Board, Utrecht, The Netherlands.; Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Utrecht, The Netherlands., Prinsen CAC; CHORD COUSIN Collaboration, Amsterdam Public Health, Infection and Immunity, Department of Dermatology, Academic Medical Center, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Wally V; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Welponer T; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Spuls PI; Department of Dermatology, Academic Medical Center, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.; Amsterdam Public Health, Infection and Immunity, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands., Laimer M; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Bolling MC; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands. m.c.bolling@umcg.nl. |
| Corporate Authors: | COSEB Consortium |
| Source: | Trials [Trials] 2025 Oct 09; Vol. 26 (1), pp. 399. Date of Electronic Publication: 2025 Oct 09. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101263253 Publication Model: Electronic Cited Medium: Internet ISSN: 1745-6215 (Electronic) Linking ISSN: 17456215 NLM ISO Abbreviation: Trials Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1745-6215 |
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| DOI: | 10.1186/s13063-025-09052-w |
