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Primary ciliary dyskinesia: a national expert consensus statement on standards of care.

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Title: Primary ciliary dyskinesia: a national expert consensus statement on standards of care.
Authors: Robson EA; Paediatric Primary Ciliary Dyskinesia Management Service, Leeds Centre for Children's Respiratory Medicine, Leeds Teaching Hospital NHS Trust, Leeds, UK.; These authors contributed equally., Spoletini G; Adult Primary Ciliary Dyskinesia Management Service, Department of Respiratory Medicine, Leeds Teaching Hospital NHS Trust, Leeds, UK.; These authors contributed equally., Bercusson A; Adult Primary Ciliary Dyskinesia Management Service, University Hospital Southampton NHS Foundation Trust, Southampton, UK.; Host Defence Unit, Royal Brompton Hospital and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.; These authors contributed equally., Carr SB; Paediatric Primary Ciliary Dyskinesia Management Service, Royal Brompton and Harefield Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.; NHLI, Imperial College London, London, UK., Carroll M; Adult Primary Ciliary Dyskinesia Management Service, University Hospital Southampton NHS Foundation Trust, Southampton, UK., Dexter K; PCD Support UK, Buckingham, UK., Dixon L; PCD Support UK, Buckingham, UK., Hogg C; NHLI, Imperial College London, London, UK.; Department of Paediatric Respiratory Medicine, Royal Brompton and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK., Jones A; Host Defence Unit, Royal Brompton Hospital and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.; NHLI, Imperial College London, London, UK., Kenia P; Paediatric Primary Ciliary Dyskinesia Management Service, Department of Paediatric Respiratory Medicine, Birmingham Children's Hospital, Birmingham, UK., Loebinger M; Host Defence Unit, Royal Brompton Hospital and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.; NHLI, Imperial College London, London, UK., Lucas JS; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.; University of Southampton Faculty of Medicine, School of Clinical and Experimental Medicine, Southampton, UK., Moya E; Paediatric Primary Ciliary Dyskinesia Management Service, Bradford Teaching Hospital NHS Trust, Bradford, UK., O'Callaghan C; Primary Ciliary Dyskinesia Diagnostic Service, University Hospitals of Leicester, Leicester, UK.; GOS Institute of Child Health, University College London, London, UK., Patel D; Primary Ciliary Dyskinesia Diagnostic Service, University Hospitals of Leicester, Leicester, UK.; Paediatric Primary Ciliary Management Service, University Hospitals of Leicester, Leicester, UK., Peckham DG; Adult Primary Ciliary Dyskinesia Management Service, Department of Respiratory Medicine, Leeds Teaching Hospital NHS Trust, Leeds, UK.; LIMR, University of Leeds, Leeds, UK., Range S; Adult Primary Ciliary Dyskinesia Management Service, Department of Respiratory Medicine, University Hospitals of Leicester, Leicester, UK., Walker WT; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Source: ERJ open research [ERJ Open Res] 2026 Jan 19; Vol. 12 (1). Date of Electronic Publication: 2026 Jan 19 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: European Respiratory Society Country of Publication: England NLM ID: 101671641 Publication Model: eCollection Cited Medium: Print ISSN: 2312-0541 (Print) Linking ISSN: 23120541 NLM ISO Abbreviation: ERJ Open Res Subsets: PubMed not MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Robson+EA%22">Robson EA</searchLink>; Paediatric Primary Ciliary Dyskinesia Management Service, Leeds Centre for Children's Respiratory Medicine, Leeds Teaching Hospital NHS Trust, Leeds, UK.; These authors contributed equally.<br /><searchLink fieldCode="AU" term="%22Spoletini+G%22">Spoletini G</searchLink>; Adult Primary Ciliary Dyskinesia Management Service, Department of Respiratory Medicine, Leeds Teaching Hospital NHS Trust, Leeds, UK.; These authors contributed equally.<br /><searchLink fieldCode="AU" term="%22Bercusson+A%22">Bercusson A</searchLink>; Adult Primary Ciliary Dyskinesia Management Service, University Hospital Southampton NHS Foundation Trust, Southampton, UK.; Host Defence Unit, Royal Brompton Hospital and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.; These authors contributed equally.<br /><searchLink fieldCode="AU" term="%22Carr+SB%22">Carr SB</searchLink>; Paediatric Primary Ciliary Dyskinesia Management Service, Royal Brompton and Harefield Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.; NHLI, Imperial College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Carroll+M%22">Carroll M</searchLink>; Adult Primary Ciliary Dyskinesia Management Service, University Hospital Southampton NHS Foundation Trust, Southampton, UK.<br /><searchLink fieldCode="AU" term="%22Dexter+K%22">Dexter K</searchLink>; PCD Support UK, Buckingham, UK.<br /><searchLink fieldCode="AU" term="%22Dixon+L%22">Dixon L</searchLink>; PCD Support UK, Buckingham, UK.<br /><searchLink fieldCode="AU" term="%22Hogg+C%22">Hogg C</searchLink>; NHLI, Imperial College London, London, UK.; Department of Paediatric Respiratory Medicine, Royal Brompton and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Jones+A%22">Jones A</searchLink>; Host Defence Unit, Royal Brompton Hospital and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.; NHLI, Imperial College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Kenia+P%22">Kenia P</searchLink>; Paediatric Primary Ciliary Dyskinesia Management Service, Department of Paediatric Respiratory Medicine, Birmingham Children's Hospital, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Loebinger+M%22">Loebinger M</searchLink>; Host Defence Unit, Royal Brompton Hospital and Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.; NHLI, Imperial College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Lucas+JS%22">Lucas JS</searchLink>; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.; University of Southampton Faculty of Medicine, School of Clinical and Experimental Medicine, Southampton, UK.<br /><searchLink fieldCode="AU" term="%22Moya+E%22">Moya E</searchLink>; Paediatric Primary Ciliary Dyskinesia Management Service, Bradford Teaching Hospital NHS Trust, Bradford, UK.<br /><searchLink fieldCode="AU" term="%22O'Callaghan+C%22">O'Callaghan C</searchLink>; Primary Ciliary Dyskinesia Diagnostic Service, University Hospitals of Leicester, Leicester, UK.; GOS Institute of Child Health, University College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Patel+D%22">Patel D</searchLink>; Primary Ciliary Dyskinesia Diagnostic Service, University Hospitals of Leicester, Leicester, UK.; Paediatric Primary Ciliary Management Service, University Hospitals of Leicester, Leicester, UK.<br /><searchLink fieldCode="AU" term="%22Peckham+DG%22">Peckham DG</searchLink>; Adult Primary Ciliary Dyskinesia Management Service, Department of Respiratory Medicine, Leeds Teaching Hospital NHS Trust, Leeds, UK.; LIMR, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Range+S%22">Range S</searchLink>; Adult Primary Ciliary Dyskinesia Management Service, Department of Respiratory Medicine, University Hospitals of Leicester, Leicester, UK.<br /><searchLink fieldCode="AU" term="%22Walker+WT%22">Walker WT</searchLink>; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
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  Data: <searchLink fieldCode="JN" term="%22101671641%22">ERJ open research</searchLink> [ERJ Open Res] 2026 Jan 19; Vol. 12 (1). <i>Date of Electronic Publication: </i>2026 Jan 19 (<i>Print Publication: </i>2026).
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