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Clinical and Humanistic Burden Among Adults with Neurofibromatosis Type 1 and Symptomatic Plexiform Neurofibroma in the United States.

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Title: Clinical and Humanistic Burden Among Adults with Neurofibromatosis Type 1 and Symptomatic Plexiform Neurofibroma in the United States.
Authors: Yang X; Merck & Co., Inc., 126 E Lincoln Ave, Rahway, NJ, 07065, USA. Xiaoqin.Yang@merck.com., Done N; Analysis Group Inc., Boston, MA, USA., Cunnington M; Analysis Group Ltd., London, UK., Gao Y; Analysis Group Inc., Boston, MA, USA., Dettling T; Alexion, AstraZeneca Rare Disease, Boston, MA, USA., Pfefferkorn J; Analysis Group Inc., Boston, MA, USA., Young-Xu L; Analysis Group Inc., Boston, MA, USA., Duh MS; Analysis Group Inc., Boston, MA, USA., Wolters PL; Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA.
Source: Neurology and therapy [Neurol Ther] 2026 Apr; Vol. 15 (2), pp. 597-616. Date of Electronic Publication: 2026 Jan 24.
Publication Type: Journal Article
Journal Info: Publisher: Springer Country of Publication: New Zealand NLM ID: 101637818 Publication Model: Print-Electronic Cited Medium: Print ISSN: 2193-8253 (Print) Linking ISSN: 21936536 NLM ISO Abbreviation: Neurol Ther Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: Clinical and Humanistic Burden Among Adults with Neurofibromatosis Type 1 and Symptomatic Plexiform Neurofibroma in the United States.
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  Data: <searchLink fieldCode="AU" term="%22Yang+X%22">Yang X</searchLink>; Merck & Co., Inc., 126 E Lincoln Ave, Rahway, NJ, 07065, USA. Xiaoqin.Yang@merck.com.<br /><searchLink fieldCode="AU" term="%22Done+N%22">Done N</searchLink>; Analysis Group Inc., Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Cunnington+M%22">Cunnington M</searchLink>; Analysis Group Ltd., London, UK.<br /><searchLink fieldCode="AU" term="%22Gao+Y%22">Gao Y</searchLink>; Analysis Group Inc., Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Dettling+T%22">Dettling T</searchLink>; Alexion, AstraZeneca Rare Disease, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Pfefferkorn+J%22">Pfefferkorn J</searchLink>; Analysis Group Inc., Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Young-Xu+L%22">Young-Xu L</searchLink>; Analysis Group Inc., Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Duh+MS%22">Duh MS</searchLink>; Analysis Group Inc., Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Wolters+PL%22">Wolters PL</searchLink>; Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA.
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  Data: <searchLink fieldCode="JN" term="%22101637818%22">Neurology and therapy</searchLink> [Neurol Ther] 2026 Apr; Vol. 15 (2), pp. 597-616. <i>Date of Electronic Publication: </i>2026 Jan 24.
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        Value: 10.1007/s40120-025-00855-2
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              Text: 2026 Apr
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              Y: 2026
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