Adult survivors of sickle cell disease, transfusion-dependent beta-thalassaemia and childhood acute leukaemia in England: protocol for a mixed methods data linkage and health-related quality of life survey study.

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Title: Adult survivors of sickle cell disease, transfusion-dependent beta-thalassaemia and childhood acute leukaemia in England: protocol for a mixed methods data linkage and health-related quality of life survey study.
Authors: Ahmed K; School of Medicine and Population Health, University of Sheffield, Sheffield, UK xbhn409@leeds.ac.uk.; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Holloway I; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Absolom K; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Mason SJ; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Mujica-Mota R; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK., Gkountouras G; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK., Martin A; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK., Flannery T; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Richards M; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., Astwood E; Department of Haematology, Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK., Ackroyd S; Department of Haematology, Bradford Teaching Hospitals NHS Foundation Trust, Bradford, UK., Greystoke B; Department of Haematology, Royal Victoria Infirmary, Newcastle upon Tyne, UK., Greenfield DM; School of Allied Health Professions, Nursing, and Midwifery, University of Sheffield, Sheffield, UK., Hill Q; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., James B; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., Kwok-Williams M; Leeds Teaching Hospitals NHS Trust, Leeds, UK., Murray RD; Department of Endocrinology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., Samuelson C; Department of Haematology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK., Simcox D; Department of Haematology, Royal Liverpool University Hospital, Liverpool, UK., Snowden JA; School of Medicine and Population Health, University of Sheffield, Sheffield, UK., Sharif J; Department of Haematology, Manchester University NHS Foundation Trust, Manchester, UK., Sadasivam N; Department of Haematology, Manchester University NHS Foundation Trust, Manchester, UK., Feltbower R; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Glaser A; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK.
Source: BMJ open [BMJ Open] 2026 Feb 02; Vol. 16 (2), pp. e111664. Date of Electronic Publication: 2026 Feb 02.
Publication Type: Journal Article; Observational Study
Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:2044-6055
DOI:10.1136/bmjopen-2025-111664