Adult survivors of sickle cell disease, transfusion-dependent beta-thalassaemia and childhood acute leukaemia in England: protocol for a mixed methods data linkage and health-related quality of life survey study.
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| Title: | Adult survivors of sickle cell disease, transfusion-dependent beta-thalassaemia and childhood acute leukaemia in England: protocol for a mixed methods data linkage and health-related quality of life survey study. |
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| Authors: | Ahmed K; School of Medicine and Population Health, University of Sheffield, Sheffield, UK xbhn409@leeds.ac.uk.; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Holloway I; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Absolom K; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Mason SJ; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Mujica-Mota R; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK., Gkountouras G; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK., Martin A; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK., Flannery T; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Richards M; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., Astwood E; Department of Haematology, Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK., Ackroyd S; Department of Haematology, Bradford Teaching Hospitals NHS Foundation Trust, Bradford, UK., Greystoke B; Department of Haematology, Royal Victoria Infirmary, Newcastle upon Tyne, UK., Greenfield DM; School of Allied Health Professions, Nursing, and Midwifery, University of Sheffield, Sheffield, UK., Hill Q; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., James B; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., Kwok-Williams M; Leeds Teaching Hospitals NHS Trust, Leeds, UK., Murray RD; Department of Endocrinology, Leeds Teaching Hospitals NHS Trust, Leeds, UK., Samuelson C; Department of Haematology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK., Simcox D; Department of Haematology, Royal Liverpool University Hospital, Liverpool, UK., Snowden JA; School of Medicine and Population Health, University of Sheffield, Sheffield, UK., Sharif J; Department of Haematology, Manchester University NHS Foundation Trust, Manchester, UK., Sadasivam N; Department of Haematology, Manchester University NHS Foundation Trust, Manchester, UK., Feltbower R; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK., Glaser A; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK. |
| Source: | BMJ open [BMJ Open] 2026 Feb 02; Vol. 16 (2), pp. e111664. Date of Electronic Publication: 2026 Feb 02. |
| Publication Type: | Journal Article; Observational Study |
| Journal Info: | Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| FullText | Text: Availability: 0 |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 41628927 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Adult survivors of sickle cell disease, transfusion-dependent beta-thalassaemia and childhood acute leukaemia in England: protocol for a mixed methods data linkage and health-related quality of life survey study. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Ahmed+K%22">Ahmed K</searchLink>; School of Medicine and Population Health, University of Sheffield, Sheffield, UK xbhn409@leeds.ac.uk.; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Holloway+I%22">Holloway I</searchLink>; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Absolom+K%22">Absolom K</searchLink>; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Mason+SJ%22">Mason SJ</searchLink>; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Mujica-Mota+R%22">Mujica-Mota R</searchLink>; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Gkountouras+G%22">Gkountouras G</searchLink>; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Martin+A%22">Martin A</searchLink>; Academic Unit of Heath Economics, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Flannery+T%22">Flannery T</searchLink>; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Richards+M%22">Richards M</searchLink>; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Astwood+E%22">Astwood E</searchLink>; Department of Haematology, Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Ackroyd+S%22">Ackroyd S</searchLink>; Department of Haematology, Bradford Teaching Hospitals NHS Foundation Trust, Bradford, UK.<br /><searchLink fieldCode="AU" term="%22Greystoke+B%22">Greystoke B</searchLink>; Department of Haematology, Royal Victoria Infirmary, Newcastle upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Greenfield+DM%22">Greenfield DM</searchLink>; School of Allied Health Professions, Nursing, and Midwifery, University of Sheffield, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Hill+Q%22">Hill Q</searchLink>; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22James+B%22">James B</searchLink>; Department of Haematology, Leeds Teaching Hospitals NHS Trust, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Kwok-Williams+M%22">Kwok-Williams M</searchLink>; Leeds Teaching Hospitals NHS Trust, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Murray+RD%22">Murray RD</searchLink>; Department of Endocrinology, Leeds Teaching Hospitals NHS Trust, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Samuelson+C%22">Samuelson C</searchLink>; Department of Haematology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Simcox+D%22">Simcox D</searchLink>; Department of Haematology, Royal Liverpool University Hospital, Liverpool, UK.<br /><searchLink fieldCode="AU" term="%22Snowden+JA%22">Snowden JA</searchLink>; School of Medicine and Population Health, University of Sheffield, Sheffield, UK.<br /><searchLink fieldCode="AU" term="%22Sharif+J%22">Sharif J</searchLink>; Department of Haematology, Manchester University NHS Foundation Trust, Manchester, UK.<br /><searchLink fieldCode="AU" term="%22Sadasivam+N%22">Sadasivam N</searchLink>; Department of Haematology, Manchester University NHS Foundation Trust, Manchester, UK.<br /><searchLink fieldCode="AU" term="%22Feltbower+R%22">Feltbower R</searchLink>; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Glaser+A%22">Glaser A</searchLink>; Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds, UK. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22101552874%22">BMJ open</searchLink> [BMJ Open] 2026 Feb 02; Vol. 16 (2), pp. e111664. <i>Date of Electronic Publication: </i>2026 Feb 02. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article; Observational Study – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BMJ+Publishing+Group+Ltd%22">BMJ Publishing Group Ltd </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101552874 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2044-6055 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2220446055%22">20446055 </searchLink><i>NLM ISO Abbreviation: </i>BMJ Open <i>Subsets: </i>MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=41628927 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1136/bmjopen-2025-111664 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: e111664 Titles: – TitleFull: Adult survivors of sickle cell disease, transfusion-dependent beta-thalassaemia and childhood acute leukaemia in England: protocol for a mixed methods data linkage and health-related quality of life survey study. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Ahmed K – PersonEntity: Name: NameFull: Holloway I – PersonEntity: Name: NameFull: Absolom K – PersonEntity: Name: NameFull: Mason SJ – PersonEntity: Name: NameFull: Mujica-Mota R – PersonEntity: Name: NameFull: Gkountouras G – PersonEntity: Name: NameFull: Martin A – PersonEntity: Name: NameFull: Flannery T – PersonEntity: Name: NameFull: Richards M – PersonEntity: Name: NameFull: Astwood E – PersonEntity: Name: NameFull: Ackroyd S – PersonEntity: Name: NameFull: Greystoke B – PersonEntity: Name: NameFull: Greenfield DM – PersonEntity: Name: NameFull: Hill Q – PersonEntity: Name: NameFull: James B – PersonEntity: Name: NameFull: Kwok-Williams M – PersonEntity: Name: NameFull: Murray RD – PersonEntity: Name: NameFull: Samuelson C – PersonEntity: Name: NameFull: Simcox D – PersonEntity: Name: NameFull: Snowden JA – PersonEntity: Name: NameFull: Sharif J – PersonEntity: Name: NameFull: Sadasivam N – PersonEntity: Name: NameFull: Feltbower R – PersonEntity: Name: NameFull: Glaser A IsPartOfRelationships: – BibEntity: Dates: – D: 02 M: 02 Text: 2026 Feb 02 Type: published Y: 2026 Identifiers: – Type: issn-electronic Value: 2044-6055 Numbering: – Type: volume Value: 16 – Type: issue Value: 2 Titles: – TitleFull: BMJ open Type: main |
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