Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth.
Saved in:
| Title: | Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth. |
|---|---|
| Authors: | Saraff V; Birmingham Women's and Children's Hospital, Birmingham, UK. vrinda.saraff@nhs.net., Arango-Sancho P; Sant Joan de Déu Barcelona Hospital, Barcelona, Spain., Bacchetta J; Hospices Civils de Lyon, Lyon, France., Boot AM; University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., Burren CP; University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK., Chinoy A; Royal Manchester Children's Hospital, Manchester, UK., Dharmaraj P; Alder Hey Children's Hospital, Liverpool, UK., Gómez Llorente MA; Hospital Virgen de Las Nieves, Granada, Spain., González Rodríguez JD; Department of Pediatric Nephrology, Santa Lucia General University Hospital, Cartagena, Spain., Gueorguieva I; Centre Hospitalier Universitaire de Lille, Lille, France., Hayes W; Great Ormond Street Hospital, London, UK., Schnabel D; Center for Chronic Sick Children, Pediatric Endocrinology, Charité - University Medicine Berlin, Berlin, Germany., Duro HR; Pediatric Nephrology, Vall d'Hebron University Hospital, Barcelona, Spain., Davies EH; Aparito Ltd, a Wholly Owned Subsidiary of Eli Lilly &Co., Wrexham, UK., Komarzynski S; Aparito Ltd, a Wholly Owned Subsidiary of Eli Lilly &Co., Wrexham, UK., Rylands AJ; Kyowa Kirin International, Marlow, UK., Sandilands K; Kyowa Kirin International, Marlow, UK., Ishii H; Kyowa Kirin Co., Ltd., Tokyo, Japan., Williams A; Kyowa Kirin International, Marlow, UK., Selveindran S; Open Health Ltd, Marlow, UK., Barlassina A; Open Health Ltd, Marlow, UK., Bowden A; Spire Outcomes Limited, London, UK., Linglart A; Paris Saclay University, AP-HP, INSERM Bicêtre Paris Saclay Hospital, Le Kremlin Bicêtre, Paris, France. |
| Source: | Orphanet journal of rare diseases [Orphanet J Rare Dis] 2026 Feb 03; Vol. 21 (1). Date of Electronic Publication: 2026 Feb 03. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
Be the first to leave a comment!
