Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure.
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| Title: | Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure. |
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| Authors: | Tahar K; Department of Medical Informatics, University Medical Center Göttingen, Georg-August-University, 37075, Göttingen, Germany. Kais.Tahar@med.ovgu.de.; Institute for Public Health in Acute Medicine, University Medicine Magdeburg, Magdeburg, Germany. Kais.Tahar@med.ovgu.de., Verbuecheln R; Medical Data Integration Center, University Hospital Tübingen, Tübingen, Germany., Martin T; Centre for Rare Diseases, University Hospital Tübingen, Tübingen, Germany., Graessner H; Centre for Rare Diseases, University Hospital Tübingen, Tübingen, Germany., Biergans S; Medical Data Integration Center, University Hospital Tübingen, Tübingen, Germany., Krefting D; Department of Medical Informatics, University Medical Center Göttingen, Georg-August-University, 37075, Göttingen, Germany. |
| Source: | BMC medical informatics and decision making [BMC Med Inform Decis Mak] 2026 Mar 02; Vol. 26 (1). Date of Electronic Publication: 2026 Mar 02. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101088682 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6947 (Electronic) Linking ISSN: 14726947 NLM ISO Abbreviation: BMC Med Inform Decis Mak Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| ISSN: | 1472-6947 |
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| DOI: | 10.1186/s12911-025-03153-x |
