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Quality of life and care experiences in a US multi-institutional neuroendocrine tumor cohort.

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Title: Quality of life and care experiences in a US multi-institutional neuroendocrine tumor cohort.
Authors: O'Rorke MA; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA., Xu T; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA., Decook RR; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA., Mcdowell BD; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Population Research Core, Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA., Gryzlak BM; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA., Rudzianski NJ; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA., Serrano KC; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA., Wehrheim AM; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA., Grewal US; Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA., Chandrasekharan C; Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.; Department of Gastrointestinal Medical Oncology, The University of Texas MD Anderson Cancer Center, Houston, TX, USA., Dillon JS; Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA., Halfdanarson TR; Mayo Clinic, Rochester, MN, USA., Gamblin TC; Medical College of Wisconsin, Milwaukee, WI, USA., Cowell LG; O'Donnell School of Public Health, UT Southwestern Medical Center, Dallas, TX, USA., Else T; Department of Internal Medicine, Division of Metabolism, Endocrinology and Diabetes, University of Michigan, Ann Arbor, MI, USA., Soares HP; Huntsman Cancer Institute, University of Utah, Salt Lake City, Utah, USA., Sukrithan V; Division of Medical Oncology, Department of Medicine, The Ohio State University Comprehensive Cancer Center, Columbus, OH, USA., Chandaka S; University of Kansas Medical Center, Kansas City, KS, USA., Sanoff HK; Division of Oncology, Department of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA., He FC; Allina Health Cancer Institute, Minneapolis, MN, USA., Geller D; University of Pittsburgh, Pittsburgh, PA, USA., Ramirez RA; Department of Internal Medicine, Division of Hematology/Oncology, Vanderbilt University Medical Center, Nashville, TN, USA., Liu M; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, Gainesville, FL, USA., Lancaster W; Department of Surgery, Medical University of South Carolina, Charleston, SC, USA., Mailman JA; NorCal CarciNET Community, Oakland, CA, USA., Moran H; The Healing NET Foundation, Los Angeles, CA, USA., Wahmann M; Neuroendocrine Cancer Awareness Network, Fort Mill, SC, USA., Gellerman E; Neuroendocrine Tumor Research Foundation, Boston, MA, USA., Chrischilles EA; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.
Corporate Authors: NET-PRO Study Investigators
Source: Journal of the National Cancer Institute [J Natl Cancer Inst] 2026 Mar 10. Date of Electronic Publication: 2026 Mar 10.
Publication Type: Journal Article
Journal Info: Publisher: Oxford University Press Country of Publication: United States NLM ID: 7503089 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1460-2105 (Electronic) Linking ISSN: 00278874 NLM ISO Abbreviation: J Natl Cancer Inst Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22O'Rorke+MA%22">O'Rorke MA</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Xu+T%22">Xu T</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Decook+RR%22">Decook RR</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Mcdowell+BD%22">Mcdowell BD</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Population Research Core, Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Gryzlak+BM%22">Gryzlak BM</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Rudzianski+NJ%22">Rudzianski NJ</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Serrano+KC%22">Serrano KC</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Wehrheim+AM%22">Wehrheim AM</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Grewal+US%22">Grewal US</searchLink>; Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Chandrasekharan+C%22">Chandrasekharan C</searchLink>; Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.; Department of Gastrointestinal Medical Oncology, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.<br /><searchLink fieldCode="AU" term="%22Dillon+JS%22">Dillon JS</searchLink>; Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.<br /><searchLink fieldCode="AU" term="%22Halfdanarson+TR%22">Halfdanarson TR</searchLink>; Mayo Clinic, Rochester, MN, USA.<br /><searchLink fieldCode="AU" term="%22Gamblin+TC%22">Gamblin TC</searchLink>; Medical College of Wisconsin, Milwaukee, WI, USA.<br /><searchLink fieldCode="AU" term="%22Cowell+LG%22">Cowell LG</searchLink>; O'Donnell School of Public Health, UT Southwestern Medical Center, Dallas, TX, USA.<br /><searchLink fieldCode="AU" term="%22Else+T%22">Else T</searchLink>; Department of Internal Medicine, Division of Metabolism, Endocrinology and Diabetes, University of Michigan, Ann Arbor, MI, USA.<br /><searchLink fieldCode="AU" term="%22Soares+HP%22">Soares HP</searchLink>; Huntsman Cancer Institute, University of Utah, Salt Lake City, Utah, USA.<br /><searchLink fieldCode="AU" term="%22Sukrithan+V%22">Sukrithan V</searchLink>; Division of Medical Oncology, Department of Medicine, The Ohio State University Comprehensive Cancer Center, Columbus, OH, USA.<br /><searchLink fieldCode="AU" term="%22Chandaka+S%22">Chandaka S</searchLink>; University of Kansas Medical Center, Kansas City, KS, USA.<br /><searchLink fieldCode="AU" term="%22Sanoff+HK%22">Sanoff HK</searchLink>; Division of Oncology, Department of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.<br /><searchLink fieldCode="AU" term="%22He+FC%22">He FC</searchLink>; Allina Health Cancer Institute, Minneapolis, MN, USA.<br /><searchLink fieldCode="AU" term="%22Geller+D%22">Geller D</searchLink>; University of Pittsburgh, Pittsburgh, PA, USA.<br /><searchLink fieldCode="AU" term="%22Ramirez+RA%22">Ramirez RA</searchLink>; Department of Internal Medicine, Division of Hematology/Oncology, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Liu+M%22">Liu M</searchLink>; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, Gainesville, FL, USA.<br /><searchLink fieldCode="AU" term="%22Lancaster+W%22">Lancaster W</searchLink>; Department of Surgery, Medical University of South Carolina, Charleston, SC, USA.<br /><searchLink fieldCode="AU" term="%22Mailman+JA%22">Mailman JA</searchLink>; NorCal CarciNET Community, Oakland, CA, USA.<br /><searchLink fieldCode="AU" term="%22Moran+H%22">Moran H</searchLink>; The Healing NET Foundation, Los Angeles, CA, USA.<br /><searchLink fieldCode="AU" term="%22Wahmann+M%22">Wahmann M</searchLink>; Neuroendocrine Cancer Awareness Network, Fort Mill, SC, USA.<br /><searchLink fieldCode="AU" term="%22Gellerman+E%22">Gellerman E</searchLink>; Neuroendocrine Tumor Research Foundation, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Chrischilles+EA%22">Chrischilles EA</searchLink>; College of Public Health, Department of Epidemiology, University of Iowa, Iowa City, Iowa, USA.; Holden Comprehensive Cancer Center, University of Iowa, Iowa City, Iowa, USA.
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