The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy.

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Title: The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy.
Authors: Baker GA; International Bureau for Epilepsy, Washington, DC, USA.; Department of Molecular and Clinical Pharmacology, University of Liverpool, Liverpool, UK., Bagga SK; MediPaCe, London, UK., Walsh D; International Bureau for Epilepsy, Washington, DC, USA., Nolan C; International Bureau for Epilepsy, Washington, DC, USA., Sharma S; International Bureau for Epilepsy, Washington, DC, USA., Hooker C; MediPaCe, London, UK., Gonzalez Parrao P; MediPaCe, London, UK., Sofia F; International Bureau for Epilepsy, Washington, DC, USA., Cross JH; UCL-NIHR BRC Great Ormond Street Institute of Child Health, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK., Bertone MM; Hemispherectomy Foundation (FundHemi), Rosario, Santa Fe, Argentina., García I; Fundación Espacio Epilepsia, Córdoba, Argentina., Janneh AJ; Foundation for Epilepsy and Stigma Support-Gambia (FESSGam), Serekunda, The Gambia., Kukla A; Partners Against Mortality in Epilepsy (PAME), Chicago, Illinois, USA., Montero EV; Spanish Federation of Epilepsy (FEDE), Seville, Spain., Ding D; Institute of Neurology, Fudan University Huashan Hospital, Shanghai, China., Friedrich L; Department of Neurology 'Sveti Duh' University Hospital, Zagreb, Croatia., Pinto LF; Brazilian Epilepsy Association, São Paulo, Brazil., Singh G; Department of Neurology, Dayanand Medical College & Hospital, Ludhiana, India.; Institute of Neurology, Department of Clinical & Experimental Epilepsy, University College London, London, UK., Triki CC; Child Neurology Department, Sfax Medical School, University of Sfax, Sfax, Tunisia., Raj L; Ontario Brain Institute, Toronto, Ontario, Canada., Reese A; MediPaCe, London, UK.
Corporate Authors: GENS Collaborators
Source: Epilepsia open [Epilepsia Open] 2026 Jun; Vol. 11 (3), pp. 814-832. Date of Electronic Publication: 2026 Apr 15.
Publication Type: Journal Article
Journal Info: Publisher: John Wiley & Sons, Inc Country of Publication: United States NLM ID: 101692036 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2470-9239 (Electronic) Linking ISSN: 24709239 NLM ISO Abbreviation: Epilepsia Open Subsets: MEDLINE
Database: MEDLINE Ultimate
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Description
ISSN:2470-9239
DOI:10.1002/epi4.70237