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The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy.

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Title: The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy.
Authors: Baker GA; International Bureau for Epilepsy, Washington, DC, USA.; Department of Molecular and Clinical Pharmacology, University of Liverpool, Liverpool, UK., Bagga SK; MediPaCe, London, UK., Walsh D; International Bureau for Epilepsy, Washington, DC, USA., Nolan C; International Bureau for Epilepsy, Washington, DC, USA., Sharma S; International Bureau for Epilepsy, Washington, DC, USA., Hooker C; MediPaCe, London, UK., Gonzalez Parrao P; MediPaCe, London, UK., Sofia F; International Bureau for Epilepsy, Washington, DC, USA., Cross JH; UCL-NIHR BRC Great Ormond Street Institute of Child Health, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK., Bertone MM; Hemispherectomy Foundation (FundHemi), Rosario, Santa Fe, Argentina., García I; Fundación Espacio Epilepsia, Córdoba, Argentina., Janneh AJ; Foundation for Epilepsy and Stigma Support-Gambia (FESSGam), Serekunda, The Gambia., Kukla A; Partners Against Mortality in Epilepsy (PAME), Chicago, Illinois, USA., Montero EV; Spanish Federation of Epilepsy (FEDE), Seville, Spain., Ding D; Institute of Neurology, Fudan University Huashan Hospital, Shanghai, China., Friedrich L; Department of Neurology 'Sveti Duh' University Hospital, Zagreb, Croatia., Pinto LF; Brazilian Epilepsy Association, São Paulo, Brazil., Singh G; Department of Neurology, Dayanand Medical College & Hospital, Ludhiana, India.; Institute of Neurology, Department of Clinical & Experimental Epilepsy, University College London, London, UK., Triki CC; Child Neurology Department, Sfax Medical School, University of Sfax, Sfax, Tunisia., Raj L; Ontario Brain Institute, Toronto, Ontario, Canada., Reese A; MediPaCe, London, UK.
Corporate Authors: GENS Collaborators
Source: Epilepsia open [Epilepsia Open] 2026 Jun; Vol. 11 (3), pp. 814-832. Date of Electronic Publication: 2026 Apr 15.
Publication Type: Journal Article
Journal Info: Publisher: John Wiley & Sons, Inc Country of Publication: United States NLM ID: 101692036 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2470-9239 (Electronic) Linking ISSN: 24709239 NLM ISO Abbreviation: Epilepsia Open Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy.
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  Data: <searchLink fieldCode="AU" term="%22Baker+GA%22">Baker GA</searchLink>; International Bureau for Epilepsy, Washington, DC, USA.; Department of Molecular and Clinical Pharmacology, University of Liverpool, Liverpool, UK.<br /><searchLink fieldCode="AU" term="%22Bagga+SK%22">Bagga SK</searchLink>; MediPaCe, London, UK.<br /><searchLink fieldCode="AU" term="%22Walsh+D%22">Walsh D</searchLink>; International Bureau for Epilepsy, Washington, DC, USA.<br /><searchLink fieldCode="AU" term="%22Nolan+C%22">Nolan C</searchLink>; International Bureau for Epilepsy, Washington, DC, USA.<br /><searchLink fieldCode="AU" term="%22Sharma+S%22">Sharma S</searchLink>; International Bureau for Epilepsy, Washington, DC, USA.<br /><searchLink fieldCode="AU" term="%22Hooker+C%22">Hooker C</searchLink>; MediPaCe, London, UK.<br /><searchLink fieldCode="AU" term="%22Gonzalez+Parrao+P%22">Gonzalez Parrao P</searchLink>; MediPaCe, London, UK.<br /><searchLink fieldCode="AU" term="%22Sofia+F%22">Sofia F</searchLink>; International Bureau for Epilepsy, Washington, DC, USA.<br /><searchLink fieldCode="AU" term="%22Cross+JH%22">Cross JH</searchLink>; UCL-NIHR BRC Great Ormond Street Institute of Child Health, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Bertone+MM%22">Bertone MM</searchLink>; Hemispherectomy Foundation (FundHemi), Rosario, Santa Fe, Argentina.<br /><searchLink fieldCode="AU" term="%22García+I%22">García I</searchLink>; Fundación Espacio Epilepsia, Córdoba, Argentina.<br /><searchLink fieldCode="AU" term="%22Janneh+AJ%22">Janneh AJ</searchLink>; Foundation for Epilepsy and Stigma Support-Gambia (FESSGam), Serekunda, The Gambia.<br /><searchLink fieldCode="AU" term="%22Kukla+A%22">Kukla A</searchLink>; Partners Against Mortality in Epilepsy (PAME), Chicago, Illinois, USA.<br /><searchLink fieldCode="AU" term="%22Montero+EV%22">Montero EV</searchLink>; Spanish Federation of Epilepsy (FEDE), Seville, Spain.<br /><searchLink fieldCode="AU" term="%22Ding+D%22">Ding D</searchLink>; Institute of Neurology, Fudan University Huashan Hospital, Shanghai, China.<br /><searchLink fieldCode="AU" term="%22Friedrich+L%22">Friedrich L</searchLink>; Department of Neurology 'Sveti Duh' University Hospital, Zagreb, Croatia.<br /><searchLink fieldCode="AU" term="%22Pinto+LF%22">Pinto LF</searchLink>; Brazilian Epilepsy Association, São Paulo, Brazil.<br /><searchLink fieldCode="AU" term="%22Singh+G%22">Singh G</searchLink>; Department of Neurology, Dayanand Medical College & Hospital, Ludhiana, India.; Institute of Neurology, Department of Clinical & Experimental Epilepsy, University College London, London, UK.<br /><searchLink fieldCode="AU" term="%22Triki+CC%22">Triki CC</searchLink>; Child Neurology Department, Sfax Medical School, University of Sfax, Sfax, Tunisia.<br /><searchLink fieldCode="AU" term="%22Raj+L%22">Raj L</searchLink>; Ontario Brain Institute, Toronto, Ontario, Canada.<br /><searchLink fieldCode="AU" term="%22Reese+A%22">Reese A</searchLink>; MediPaCe, London, UK.
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  Data: <searchLink fieldCode="JN" term="%22101692036%22">Epilepsia open</searchLink> [Epilepsia Open] 2026 Jun; Vol. 11 (3), pp. 814-832. <i>Date of Electronic Publication: </i>2026 Apr 15.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22John+Wiley+%26+Sons%2C+Inc%22">John Wiley & Sons, Inc </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101692036 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2470-9239 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2224709239%22">24709239 </searchLink><i>NLM ISO Abbreviation: </i>Epilepsia Open <i>Subsets: </i>MEDLINE
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