Advancing neuromuscular disease research through real-world data: Challenges and lessons learned.
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| Title: | Advancing neuromuscular disease research through real-world data: Challenges and lessons learned. |
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| Authors: | Munn JS; Division of Respiratory Medicine, Department of Pediatrics, The Hospital for Sick Children, The University of Toronto, Toronto, ON, Canada.; ICES, Toronto, ON, Canada.; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada., Cohen E; ICES, Toronto, ON, Canada.; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada.; Division of Paediatric Medicine, Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada.; Edwin S.H. Leong Centre for Healthy Children, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada., Hodgkinson V; Hotchkiss Brain Institute, University of Calgary, Calgary, AB, Canada.; Department of Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada., Lochmüller H; Children's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.; Department of Medicine, Division of Neurology, The Ottawa Hospital, Ottawa, ON, Canada.; Brain and Mind Research Institute, University of Ottawa, Ottawa, ON, Canada.; Department of Neuropediatrics and Muscle Disorders, Faculty of Medicine, Medical Center-University of Freiburg, Freiburg, Germany., Osman H; Muscular Dystrophy Canada, Toronto, ON, Canada.; Neuromuscular Disease Network for Canada, Ottawa, ON, Canada., Jewett G; Hotchkiss Brain Institute, University of Calgary, Calgary, AB, Canada.; Department of Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada., Amin R; Division of Respiratory Medicine, Department of Pediatrics, The Hospital for Sick Children, The University of Toronto, Toronto, ON, Canada.; ICES, Toronto, ON, Canada.; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada. |
| Source: | Journal of neuromuscular diseases [J Neuromuscul Dis] 2026 Nov; Vol. 13 (6), pp. 1564-1566. Date of Electronic Publication: 2026 Jun 09. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: IOS Press Country of Publication: United States NLM ID: 101649948 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2214-3602 (Electronic) Linking ISSN: 22143599 NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 2214-3602 |
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| DOI: | 10.1177/22143602261456016 |
