Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta.

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Title: Parent and professional experiences of a clinical trial of prenatal and postnatal stem cell therapy for severe osteogenesis imperfecta.
Authors: Behera B; BSc Paediatrics and Child Health, UCL Great Ormond Street Institute of Child Health, London, UK., Ingvoldstad Malmgren C; Center for Research Ethics and Bioethics, Uppsala University, Uppsala, Sweden.; Center for Fetal Medicine, Karolinska University Hospital, Stockholm, Sweden.; Department of Molecular Medicine and Surgery, Karolinska Institutet, Stockholm, Sweden., Åström E; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.; Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden., Chitty LS; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK., Crowe B; Department of Neurosciences, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK., David AL; Elizabeth Garrett Anderson Institute for Women's Health, University College London, London, UK.; NIHR University College London Hospitals Biomedical Research Centre, London, UK., DeVile C; Department of Neurosciences, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK., Semler O; Department of Pediatrics, University Hospital Cologne, Koln, Nordrhein-Westfalen, Germany., Westgren M; Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden., Götherström C; Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.; Department of Gynecology and Reproductive Medicine, Karolinska University Hospital, Stockholm, Sweden., Hill M; North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. Melissa.hill@ucl.ac.uk.; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK. Melissa.hill@ucl.ac.uk.
Source: European journal of human genetics : EJHG [Eur J Hum Genet] 2026 Jun 30. Date of Electronic Publication: 2026 Jun 30.
Publication Type: Journal Article
Journal Info: Publisher: Nature Publishing Group Country of Publication: England NLM ID: 9302235 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1476-5438 (Electronic) Linking ISSN: 10184813 NLM ISO Abbreviation: Eur J Hum Genet Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:1476-5438
DOI:10.1038/s41431-026-02164-0