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Community perspectives on the return of research results and ownership of data and specimens for brain tumor genomic research.

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Title: Community perspectives on the return of research results and ownership of data and specimens for brain tumor genomic research.
Authors: Kwan BM; Adult & Child Center for Outcomes Research & Delivery Science, University of Colorado School of Medicine, 1890 N Revere Ct, Mail Stop F443, Aurora, CO, 80045, USA.; Department of Emergency Medicine, University of Colorado School of Medicine, Campus Box B215 12401 E. 17th Avenue, Aurora, CO, 80045, USA., Barnard JG; Adult & Child Center for Outcomes Research & Delivery Science, University of Colorado School of Medicine, 1890 N Revere Ct, Mail Stop F443, Aurora, CO, 80045, USA.; Department of Pediatrics, University of Colorado School of Medicine, 13123 E. 16th Ave. B065, Aurora, CO, 80045, USA., Ritger C; Adult & Child Center for Outcomes Research & Delivery Science, University of Colorado School of Medicine, 1890 N Revere Ct, Mail Stop F443, Aurora, CO, 80045, USA., Staton EW; Department of Family Medicine, University of Colorado School of Medicine, 13001 East 17th Place, Aurora, CO, 80045, USA., Perkins I; Center for Bioethics & Humanities, University of Colorado School of Medicine, 13080 East 19th Avenue, Aurora, CO, USA.; Department of Pathology, University of Colorado School of Medicine, 12631 E. 17th Avenue, Mail Stop B216, Aurora, CO, 80045, USA., Gonzalez-Fisher R; Low Grade Glioma Registry Research Advisory Council, PO Box 208034 60 College Street New Haven, CT, 06520-0834, USA., Lennox LA; Department of Emergency Medicine, University of Colorado School of Medicine, Campus Box B215 12401 E. 17th Avenue, Aurora, CO, 80045, USA., Gay N; Low Grade Glioma Registry Research Advisory Council, PO Box 208034 60 College Street New Haven, CT, 06520-0834, USA., Johnson KC; Low Grade Glioma Registry Research Advisory Council, PO Box 208034 60 College Street New Haven, CT, 06520-0834, USA.; Department of Neurosurgery, Yale School of Medicine, Yale University, 800 Howard Avenue, Fl Lower Level New Haven, CT, 06519, USA., Verhaak RGW; Department of Neurosurgery, Yale School of Medicine, Yale University, 800 Howard Avenue, Fl Lower Level New Haven, CT, 06519, USA.; Department of Neurosurgery, Amsterdam University Medical Center, De Boeleni 1117, 1081, HV Amsterdam, Netherlands., Claus EB; Yale School of Public Health, Laboratory of Epidemiology and Public Health, 60 College St, New Haven, CT, 06510, USA.; Department of Neurosurgery, Brigham and Women's Hospital, 60 Fenwood Road, Boston, MA, 02115, USA., DeCamp M; Division of General Internal Medicine, University of Colorado School of Medicine, 12631 E 17th Avenue Aurora, CO, 80045, USA.; Center for Bioethics & Humanities, University of Colorado School of Medicine, 13080 East 19th Avenue, Aurora, CO, USA., Salmi L; Department of Medicine, Beth Israel Deaconess Medical Center, 330 Brookline Ave., Boston, MA, 02215, USA.
Source: SSM. Qualitative research in health [SSM Qual Res Health] 2026 Jun; Vol. 9. Date of Electronic Publication: 2026 Mar 11.
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Ltd Country of Publication: England NLM ID: 9918300877606676 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2667-3215 (Electronic) Linking ISSN: 26673215 NLM ISO Abbreviation: SSM Qual Res Health Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: Community perspectives on the return of research results and ownership of data and specimens for brain tumor genomic research.
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  Data: <searchLink fieldCode="AU" term="%22Kwan+BM%22">Kwan BM</searchLink>; Adult & Child Center for Outcomes Research & Delivery Science, University of Colorado School of Medicine, 1890 N Revere Ct, Mail Stop F443, Aurora, CO, 80045, USA.; Department of Emergency Medicine, University of Colorado School of Medicine, Campus Box B215 12401 E. 17th Avenue, Aurora, CO, 80045, USA.<br /><searchLink fieldCode="AU" term="%22Barnard+JG%22">Barnard JG</searchLink>; Adult & Child Center for Outcomes Research & Delivery Science, University of Colorado School of Medicine, 1890 N Revere Ct, Mail Stop F443, Aurora, CO, 80045, USA.; Department of Pediatrics, University of Colorado School of Medicine, 13123 E. 16th Ave. B065, Aurora, CO, 80045, USA.<br /><searchLink fieldCode="AU" term="%22Ritger+C%22">Ritger C</searchLink>; Adult & Child Center for Outcomes Research & Delivery Science, University of Colorado School of Medicine, 1890 N Revere Ct, Mail Stop F443, Aurora, CO, 80045, USA.<br /><searchLink fieldCode="AU" term="%22Staton+EW%22">Staton EW</searchLink>; Department of Family Medicine, University of Colorado School of Medicine, 13001 East 17th Place, Aurora, CO, 80045, USA.<br /><searchLink fieldCode="AU" term="%22Perkins+I%22">Perkins I</searchLink>; Center for Bioethics & Humanities, University of Colorado School of Medicine, 13080 East 19th Avenue, Aurora, CO, USA.; Department of Pathology, University of Colorado School of Medicine, 12631 E. 17th Avenue, Mail Stop B216, Aurora, CO, 80045, USA.<br /><searchLink fieldCode="AU" term="%22Gonzalez-Fisher+R%22">Gonzalez-Fisher R</searchLink>; Low Grade Glioma Registry Research Advisory Council, PO Box 208034 60 College Street New Haven, CT, 06520-0834, USA.<br /><searchLink fieldCode="AU" term="%22Lennox+LA%22">Lennox LA</searchLink>; Department of Emergency Medicine, University of Colorado School of Medicine, Campus Box B215 12401 E. 17th Avenue, Aurora, CO, 80045, USA.<br /><searchLink fieldCode="AU" term="%22Gay+N%22">Gay N</searchLink>; Low Grade Glioma Registry Research Advisory Council, PO Box 208034 60 College Street New Haven, CT, 06520-0834, USA.<br /><searchLink fieldCode="AU" term="%22Johnson+KC%22">Johnson KC</searchLink>; Low Grade Glioma Registry Research Advisory Council, PO Box 208034 60 College Street New Haven, CT, 06520-0834, USA.; Department of Neurosurgery, Yale School of Medicine, Yale University, 800 Howard Avenue, Fl Lower Level New Haven, CT, 06519, USA.<br /><searchLink fieldCode="AU" term="%22Verhaak+RGW%22">Verhaak RGW</searchLink>; Department of Neurosurgery, Yale School of Medicine, Yale University, 800 Howard Avenue, Fl Lower Level New Haven, CT, 06519, USA.; Department of Neurosurgery, Amsterdam University Medical Center, De Boeleni 1117, 1081, HV Amsterdam, Netherlands.<br /><searchLink fieldCode="AU" term="%22Claus+EB%22">Claus EB</searchLink>; Yale School of Public Health, Laboratory of Epidemiology and Public Health, 60 College St, New Haven, CT, 06510, USA.; Department of Neurosurgery, Brigham and Women's Hospital, 60 Fenwood Road, Boston, MA, 02115, USA.<br /><searchLink fieldCode="AU" term="%22DeCamp+M%22">DeCamp M</searchLink>; Division of General Internal Medicine, University of Colorado School of Medicine, 12631 E 17th Avenue Aurora, CO, 80045, USA.; Center for Bioethics & Humanities, University of Colorado School of Medicine, 13080 East 19th Avenue, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Salmi+L%22">Salmi L</searchLink>; Department of Medicine, Beth Israel Deaconess Medical Center, 330 Brookline Ave., Boston, MA, 02215, USA.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier+Ltd%22">Elsevier Ltd </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>9918300877606676 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2667-3215 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2226673215%22">26673215 </searchLink><i>NLM ISO Abbreviation: </i>SSM Qual Res Health <i>Subsets: </i>PubMed not MEDLINE
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        Value: 10.1016/j.ssmqr.2026.100741
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        Text: English
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              Text: 2026 Jun
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