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Baseline characterisation of adults living with spinal muscular atrophy in the UK: insight from the Adult SMA REACH Real-World Data Collection Study.

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Bibliographic Details
Title: Baseline characterisation of adults living with spinal muscular atrophy in the UK: insight from the Adult SMA REACH Real-World Data Collection Study.
Authors: Karkkainen E; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Page J; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Segovia S; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Simms L; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Verdu-Diaz J; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Carver A; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Michell-Sodhi J; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Tanner S; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Moat D; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Lofra RM; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Marini-Bettolo C; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK. Electronic address: chiara.marini-bettolo@newcastle.ac.uk.
Corporate Authors: Adult SMA REACH clinical network.; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.
Source: Neuromuscular disorders : NMD [Neuromuscul Disord] 2026 Jun 09; Vol. 65, pp. 106465. Date of Electronic Publication: 2026 Jun 09.
Publication Type: Journal Article
Journal Info: Publisher: Pergamon Press Country of Publication: England NLM ID: 9111470 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-2364 (Electronic) Linking ISSN: 09608966 NLM ISO Abbreviation: Neuromuscul Disord Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:1873-2364
DOI:10.1016/j.nmd.2026.106465