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Baseline characterisation of adults living with spinal muscular atrophy in the UK: insight from the Adult SMA REACH Real-World Data Collection Study.

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Title: Baseline characterisation of adults living with spinal muscular atrophy in the UK: insight from the Adult SMA REACH Real-World Data Collection Study.
Authors: Karkkainen E; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Page J; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Segovia S; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Simms L; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Verdu-Diaz J; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Carver A; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Michell-Sodhi J; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Tanner S; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Moat D; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Lofra RM; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK., Marini-Bettolo C; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK. Electronic address: chiara.marini-bettolo@newcastle.ac.uk.
Corporate Authors: Adult SMA REACH clinical network.; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.
Source: Neuromuscular disorders : NMD [Neuromuscul Disord] 2026 Jun 09; Vol. 65, pp. 106465. Date of Electronic Publication: 2026 Jun 09.
Publication Type: Journal Article
Journal Info: Publisher: Pergamon Press Country of Publication: England NLM ID: 9111470 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-2364 (Electronic) Linking ISSN: 09608966 NLM ISO Abbreviation: Neuromuscul Disord Subsets: MEDLINE
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  Data: Baseline characterisation of adults living with spinal muscular atrophy in the UK: insight from the Adult SMA REACH Real-World Data Collection Study.
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  Data: <searchLink fieldCode="AU" term="%22Karkkainen+E%22">Karkkainen E</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Page+J%22">Page J</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Segovia+S%22">Segovia S</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Simms+L%22">Simms L</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Verdu-Diaz+J%22">Verdu-Diaz J</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Carver+A%22">Carver A</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Michell-Sodhi+J%22">Michell-Sodhi J</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Tanner+S%22">Tanner S</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Moat+D%22">Moat D</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Lofra+RM%22">Lofra RM</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK.<br /><searchLink fieldCode="AU" term="%22Marini-Bettolo+C%22">Marini-Bettolo C</searchLink>; John Walton Muscular Dystrophy Research Centre, Newcastle University & Newcastle Hospitals NHS Trust; NIHR Newcastle Biomedical Research Centre (BRC), Newcastle Upon Tyne, UK. Electronic address: chiara.marini-bettolo@newcastle.ac.uk.
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  Data: <searchLink fieldCode="JN" term="%229111470%22">Neuromuscular disorders : NMD</searchLink> [Neuromuscul Disord] 2026 Jun 09; Vol. 65, pp. 106465. <i>Date of Electronic Publication: </i>2026 Jun 09.
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              Text: 2026 Jun 09
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