The psychosocial supports and interventions accessed by family members of patients with developmental and epileptic encephalopathies: A systematic review.
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| Title: | The psychosocial supports and interventions accessed by family members of patients with developmental and epileptic encephalopathies: A systematic review. |
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| Authors: | Smith MC; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; St Vincent's Allied Health Research Unit, St Vincent's Health Network Sydney, Darlinghurst, Australia; Nursing Research Institute, St Vincent's Health Network Sydney, Darlinghurst, Australia. Electronic address: maddison.c.smith@unsw.edu.au., Wang Q; School of Psychology, UNSW Sydney, Kensington, New South Wales, Australia., Pierce KE; School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Rare Diseases NSW, Randwick, NSW, Australia., Marsilio K; Expert by Lived Experience, QLD, Australia., Wakefield CE; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Division of Quality of Life and Paediatric Palliative Care, Department of Paediatrics, Stanford University and Stanford Medicine Children's Health, Palo Alto, CA, USA., Howell KB; Murdoch Children's Research Institute, Royal Children's Hospital, Parkville, VIC, Australia; Neurology Department, The Royal Children's Hospital Melbourne, Melbourne, VIC, Australia; Department of Paediatrics, University of Melbourne, VIC, Australia., Palmer EE; School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Rare Diseases NSW, Randwick, NSW, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, NSW, Australia., Kelada L; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia. |
| Source: | Epilepsy & behavior : E&B [Epilepsy Behav] 2026 Jul 08; Vol. 184, pp. 111185. Date of Electronic Publication: 2026 Jul 08. |
| Publication Type: | Journal Article; Review |
| Journal Info: | Publisher: Academic Press Country of Publication: United States NLM ID: 100892858 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1525-5069 (Electronic) Linking ISSN: 15255050 NLM ISO Abbreviation: Epilepsy Behav Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| FullText | Text: Availability: 0 |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 42419101 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: The psychosocial supports and interventions accessed by family members of patients with developmental and epileptic encephalopathies: A systematic review. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Smith+MC%22">Smith MC</searchLink>; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; St Vincent's Allied Health Research Unit, St Vincent's Health Network Sydney, Darlinghurst, Australia; Nursing Research Institute, St Vincent's Health Network Sydney, Darlinghurst, Australia. Electronic address: maddison.c.smith@unsw.edu.au.<br /><searchLink fieldCode="AU" term="%22Wang+Q%22">Wang Q</searchLink>; School of Psychology, UNSW Sydney, Kensington, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Pierce+KE%22">Pierce KE</searchLink>; School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Rare Diseases NSW, Randwick, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Marsilio+K%22">Marsilio K</searchLink>; Expert by Lived Experience, QLD, Australia.<br /><searchLink fieldCode="AU" term="%22Wakefield+CE%22">Wakefield CE</searchLink>; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Division of Quality of Life and Paediatric Palliative Care, Department of Paediatrics, Stanford University and Stanford Medicine Children's Health, Palo Alto, CA, USA.<br /><searchLink fieldCode="AU" term="%22Howell+KB%22">Howell KB</searchLink>; Murdoch Children's Research Institute, Royal Children's Hospital, Parkville, VIC, Australia; Neurology Department, The Royal Children's Hospital Melbourne, Melbourne, VIC, Australia; Department of Paediatrics, University of Melbourne, VIC, Australia.<br /><searchLink fieldCode="AU" term="%22Palmer+EE%22">Palmer EE</searchLink>; School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Rare Diseases NSW, Randwick, NSW, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Kelada+L%22">Kelada L</searchLink>; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22100892858%22">Epilepsy & behavior : E&B</searchLink> [Epilepsy Behav] 2026 Jul 08; Vol. 184, pp. 111185. <i>Date of Electronic Publication: </i>2026 Jul 08. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article; Review – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Academic+Press%22">Academic Press </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>100892858 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1525-5069 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215255050%22">15255050 </searchLink><i>NLM ISO Abbreviation: </i>Epilepsy Behav <i>Subsets: </i>MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=42419101 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1016/j.yebeh.2026.111185 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 111185 Titles: – TitleFull: The psychosocial supports and interventions accessed by family members of patients with developmental and epileptic encephalopathies: A systematic review. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Smith MC – PersonEntity: Name: NameFull: Wang Q – PersonEntity: Name: NameFull: Pierce KE – PersonEntity: Name: NameFull: Marsilio K – PersonEntity: Name: NameFull: Wakefield CE – PersonEntity: Name: NameFull: Howell KB – PersonEntity: Name: NameFull: Palmer EE – PersonEntity: Name: NameFull: Kelada L IsPartOfRelationships: – BibEntity: Dates: – D: 08 M: 07 Text: 2026 Jul 08 Type: published Y: 2026 Identifiers: – Type: issn-electronic Value: 1525-5069 Numbering: – Type: volume Value: 184 Titles: – TitleFull: Epilepsy & behavior : E&B Type: main |
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