| Authors: |
Smith MC; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; St Vincent's Allied Health Research Unit, St Vincent's Health Network Sydney, Darlinghurst, Australia; Nursing Research Institute, St Vincent's Health Network Sydney, Darlinghurst, Australia. Electronic address: maddison.c.smith@unsw.edu.au., Wang Q; School of Psychology, UNSW Sydney, Kensington, New South Wales, Australia., Pierce KE; School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Rare Diseases NSW, Randwick, NSW, Australia., Marsilio K; Expert by Lived Experience, QLD, Australia., Wakefield CE; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Division of Quality of Life and Paediatric Palliative Care, Department of Paediatrics, Stanford University and Stanford Medicine Children's Health, Palo Alto, CA, USA., Howell KB; Murdoch Children's Research Institute, Royal Children's Hospital, Parkville, VIC, Australia; Neurology Department, The Royal Children's Hospital Melbourne, Melbourne, VIC, Australia; Department of Paediatrics, University of Melbourne, VIC, Australia., Palmer EE; School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Rare Diseases NSW, Randwick, NSW, Australia; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Randwick, NSW, Australia., Kelada L; Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia; Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia. |
