Lifetime congenital urologic care: centering patient voices.

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Bibliographic Details
Title: Lifetime congenital urologic care: centering patient voices.
Authors: Zhang X; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA. xinyuanzhangxyz@gmail.com.; Department of Urology, University of Washington, Seattle, USA. xinyuanzhangxyz@gmail.com., Ionson AC; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA., Groth AC; The Unsilenced Movement, Aurora, USA.; Dalla Lana School of Public Health, University of Toronto, Toronto, Canada., Allen KA; Adult Patient Advisory Council, Association for the Bladder Exstrophy Community, Vero Beach, USA., Adams R; The Unsilenced Movement, Aurora, USA., Vincent T; Adult Patient Advisory Council, Association for the Bladder Exstrophy Community, Vero Beach, USA., Sage L; Department of Urology, University of Washington, Seattle, USA., DeWitt-Foy M; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA., Wood D; Department of Urology, University of Colorado School of Medicine, Aurora, USA., Hagedorn JC; Department of Urology, University of Washington, Seattle, USA., Wood HM; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA., Hampson LA; Department of Urology, University of California, San Francisco, USA. lindsay.hampson@ucsf.edu.
Source: Journal of patient-reported outcomes [J Patient Rep Outcomes] 2026 Jul 09; Vol. 10 (1). Date of Electronic Publication: 2026 Jul 09.
Publication Type: Journal Article; Editorial
Journal Info: Publisher: Springer International Publishing Country of Publication: Germany NLM ID: 101722688 Publication Model: Electronic Cited Medium: Internet ISSN: 2509-8020 (Electronic) Linking ISSN: 25098020 NLM ISO Abbreviation: J Patient Rep Outcomes Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:2509-8020
DOI:10.1186/s41687-026-01141-x