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Lifetime congenital urologic care: centering patient voices.

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Title: Lifetime congenital urologic care: centering patient voices.
Authors: Zhang X; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA. xinyuanzhangxyz@gmail.com.; Department of Urology, University of Washington, Seattle, USA. xinyuanzhangxyz@gmail.com., Ionson AC; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA., Groth AC; The Unsilenced Movement, Aurora, USA.; Dalla Lana School of Public Health, University of Toronto, Toronto, Canada., Allen KA; Adult Patient Advisory Council, Association for the Bladder Exstrophy Community, Vero Beach, USA., Adams R; The Unsilenced Movement, Aurora, USA., Vincent T; Adult Patient Advisory Council, Association for the Bladder Exstrophy Community, Vero Beach, USA., Sage L; Department of Urology, University of Washington, Seattle, USA., DeWitt-Foy M; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA., Wood D; Department of Urology, University of Colorado School of Medicine, Aurora, USA., Hagedorn JC; Department of Urology, University of Washington, Seattle, USA., Wood HM; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA., Hampson LA; Department of Urology, University of California, San Francisco, USA. lindsay.hampson@ucsf.edu.
Source: Journal of patient-reported outcomes [J Patient Rep Outcomes] 2026 Jul 09; Vol. 10 (1). Date of Electronic Publication: 2026 Jul 09.
Publication Type: Journal Article; Editorial
Journal Info: Publisher: Springer International Publishing Country of Publication: Germany NLM ID: 101722688 Publication Model: Electronic Cited Medium: Internet ISSN: 2509-8020 (Electronic) Linking ISSN: 25098020 NLM ISO Abbreviation: J Patient Rep Outcomes Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Lifetime congenital urologic care: centering patient voices.
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  Data: <searchLink fieldCode="AU" term="%22Zhang+X%22">Zhang X</searchLink>; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA. xinyuanzhangxyz@gmail.com.; Department of Urology, University of Washington, Seattle, USA. xinyuanzhangxyz@gmail.com.<br /><searchLink fieldCode="AU" term="%22Ionson+AC%22">Ionson AC</searchLink>; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA.<br /><searchLink fieldCode="AU" term="%22Groth+AC%22">Groth AC</searchLink>; The Unsilenced Movement, Aurora, USA.; Dalla Lana School of Public Health, University of Toronto, Toronto, Canada.<br /><searchLink fieldCode="AU" term="%22Allen+KA%22">Allen KA</searchLink>; Adult Patient Advisory Council, Association for the Bladder Exstrophy Community, Vero Beach, USA.<br /><searchLink fieldCode="AU" term="%22Adams+R%22">Adams R</searchLink>; The Unsilenced Movement, Aurora, USA.<br /><searchLink fieldCode="AU" term="%22Vincent+T%22">Vincent T</searchLink>; Adult Patient Advisory Council, Association for the Bladder Exstrophy Community, Vero Beach, USA.<br /><searchLink fieldCode="AU" term="%22Sage+L%22">Sage L</searchLink>; Department of Urology, University of Washington, Seattle, USA.<br /><searchLink fieldCode="AU" term="%22DeWitt-Foy+M%22">DeWitt-Foy M</searchLink>; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA.<br /><searchLink fieldCode="AU" term="%22Wood+D%22">Wood D</searchLink>; Department of Urology, University of Colorado School of Medicine, Aurora, USA.<br /><searchLink fieldCode="AU" term="%22Hagedorn+JC%22">Hagedorn JC</searchLink>; Department of Urology, University of Washington, Seattle, USA.<br /><searchLink fieldCode="AU" term="%22Wood+HM%22">Wood HM</searchLink>; Glickman Urological Institute, Cleveland Clinic, Cleveland, USA.<br /><searchLink fieldCode="AU" term="%22Hampson+LA%22">Hampson LA</searchLink>; Department of Urology, University of California, San Francisco, USA. lindsay.hampson@ucsf.edu.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+International+Publishing%22">Springer International Publishing </searchLink><i>Country of Publication: </i>Germany <i>NLM ID: </i>101722688 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2509-8020 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2225098020%22">25098020 </searchLink><i>NLM ISO Abbreviation: </i>J Patient Rep Outcomes <i>Subsets: </i>MEDLINE
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              Text: 2026 Jul 09
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