Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practice.

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Bibliographic Details
Title: Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practice.
Authors: Broden Arciprete EG; National Clinician Scholars Program, Yale University School of Medicine, Yale University School of Public Health, New Haven, CT, USA. Electronic address: brodenar@bc.edu., Michelson KN; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Pediatric Critical Care Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA., Feder SL; Yale School of Nursing, New Haven, CT, USA., Marr JW; Faith's dad, Portland, OR, USA., Al-Roub N; School of Public Health, Yale University, New Haven, CT, USA., Gouda SR; Division of Medical Critical Care, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.; Department of Supportive Oncology, Dana-Farber Cancer Institute, Boston, MA, USA., Jones AM; Human Sciences, Stephen F. Austin State University, Nacogdoches, TX, USA., Schopen AB; Child Life Consulting, LLC., Philadelphia, PA, USA., Tapper AK; Cardiology, Boston Children's Hospital, Boston, MA, USA., Pasek TA; Clinical Nurse Specialist/ Systems Analyst, Healthcare Analytics, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA., Kelly RJ; Department of Population Health & Leadership, University of New Haven, New Haven, CT, USA., Morris LR; Courageous Parents Network, Newton, MA, USA., Olszewski AE; Pediatric Critical Care Medicine, University of Pittsburgh, Pittsburgh, PA, USA., Gallagher C; Cardiac Intensive Care Unit, Boston Children's Hospital, Boston, MA, USA., Taylor JA; No affiliation., McCarthy SB; Robert's Program on Sudden Unexpected Death in Pediatrics, Division of General Pediatrics, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA., Snaman JM; Department of Supportive Oncology; Department of Pediatric Oncology, Dana-Farber Cancer Institute, Boston, MA, USA; Department of Pediatrics, Boston Children's Hospital, Boston, MA, USA., Ananth P; Department of Pediatrics, Cancer Outcomes, Public Policy and Effectiveness Research (COPPER) Center, Yale School of Medicine, New Haven, CT, USA.
Source: Intensive & critical care nursing [Intensive Crit Care Nurs] 2026 Jul 16; Vol. 96, pp. 104498. Date of Electronic Publication: 2026 Jul 16.
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 9211274 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-4036 (Electronic) Linking ISSN: 09643397 NLM ISO Abbreviation: Intensive Crit Care Nurs Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:1532-4036
DOI:10.1016/j.iccn.2026.104498