View in EDS

Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practice.

Saved in:
Bibliographic Details
Title: Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practice.
Authors: Broden Arciprete EG; National Clinician Scholars Program, Yale University School of Medicine, Yale University School of Public Health, New Haven, CT, USA. Electronic address: brodenar@bc.edu., Michelson KN; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Pediatric Critical Care Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA., Feder SL; Yale School of Nursing, New Haven, CT, USA., Marr JW; Faith's dad, Portland, OR, USA., Al-Roub N; School of Public Health, Yale University, New Haven, CT, USA., Gouda SR; Division of Medical Critical Care, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.; Department of Supportive Oncology, Dana-Farber Cancer Institute, Boston, MA, USA., Jones AM; Human Sciences, Stephen F. Austin State University, Nacogdoches, TX, USA., Schopen AB; Child Life Consulting, LLC., Philadelphia, PA, USA., Tapper AK; Cardiology, Boston Children's Hospital, Boston, MA, USA., Pasek TA; Clinical Nurse Specialist/ Systems Analyst, Healthcare Analytics, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA., Kelly RJ; Department of Population Health & Leadership, University of New Haven, New Haven, CT, USA., Morris LR; Courageous Parents Network, Newton, MA, USA., Olszewski AE; Pediatric Critical Care Medicine, University of Pittsburgh, Pittsburgh, PA, USA., Gallagher C; Cardiac Intensive Care Unit, Boston Children's Hospital, Boston, MA, USA., Taylor JA; No affiliation., McCarthy SB; Robert's Program on Sudden Unexpected Death in Pediatrics, Division of General Pediatrics, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA., Snaman JM; Department of Supportive Oncology; Department of Pediatric Oncology, Dana-Farber Cancer Institute, Boston, MA, USA; Department of Pediatrics, Boston Children's Hospital, Boston, MA, USA., Ananth P; Department of Pediatrics, Cancer Outcomes, Public Policy and Effectiveness Research (COPPER) Center, Yale School of Medicine, New Haven, CT, USA.
Source: Intensive & critical care nursing [Intensive Crit Care Nurs] 2026 Jul 16; Vol. 96, pp. 104498. Date of Electronic Publication: 2026 Jul 16.
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 9211274 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-4036 (Electronic) Linking ISSN: 09643397 NLM ISO Abbreviation: Intensive Crit Care Nurs Subsets: MEDLINE
Database: MEDLINE Ultimate
FullText Text:
  Availability: 0
Header DbId: mdl
DbLabel: MEDLINE Ultimate
An: 42462542
AccessLevel: 2
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practice.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AU" term="%22Broden+Arciprete+EG%22">Broden Arciprete EG</searchLink>; National Clinician Scholars Program, Yale University School of Medicine, Yale University School of Public Health, New Haven, CT, USA. Electronic address: brodenar@bc.edu.<br /><searchLink fieldCode="AU" term="%22Michelson+KN%22">Michelson KN</searchLink>; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Pediatric Critical Care Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Feder+SL%22">Feder SL</searchLink>; Yale School of Nursing, New Haven, CT, USA.<br /><searchLink fieldCode="AU" term="%22Marr+JW%22">Marr JW</searchLink>; Faith's dad, Portland, OR, USA.<br /><searchLink fieldCode="AU" term="%22Al-Roub+N%22">Al-Roub N</searchLink>; School of Public Health, Yale University, New Haven, CT, USA.<br /><searchLink fieldCode="AU" term="%22Gouda+SR%22">Gouda SR</searchLink>; Division of Medical Critical Care, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.; Department of Supportive Oncology, Dana-Farber Cancer Institute, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Jones+AM%22">Jones AM</searchLink>; Human Sciences, Stephen F. Austin State University, Nacogdoches, TX, USA.<br /><searchLink fieldCode="AU" term="%22Schopen+AB%22">Schopen AB</searchLink>; Child Life Consulting, LLC., Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Tapper+AK%22">Tapper AK</searchLink>; Cardiology, Boston Children's Hospital, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Pasek+TA%22">Pasek TA</searchLink>; Clinical Nurse Specialist/ Systems Analyst, Healthcare Analytics, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.<br /><searchLink fieldCode="AU" term="%22Kelly+RJ%22">Kelly RJ</searchLink>; Department of Population Health & Leadership, University of New Haven, New Haven, CT, USA.<br /><searchLink fieldCode="AU" term="%22Morris+LR%22">Morris LR</searchLink>; Courageous Parents Network, Newton, MA, USA.<br /><searchLink fieldCode="AU" term="%22Olszewski+AE%22">Olszewski AE</searchLink>; Pediatric Critical Care Medicine, University of Pittsburgh, Pittsburgh, PA, USA.<br /><searchLink fieldCode="AU" term="%22Gallagher+C%22">Gallagher C</searchLink>; Cardiac Intensive Care Unit, Boston Children's Hospital, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Taylor+JA%22">Taylor JA</searchLink>; No affiliation.<br /><searchLink fieldCode="AU" term="%22McCarthy+SB%22">McCarthy SB</searchLink>; Robert's Program on Sudden Unexpected Death in Pediatrics, Division of General Pediatrics, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Snaman+JM%22">Snaman JM</searchLink>; Department of Supportive Oncology; Department of Pediatric Oncology, Dana-Farber Cancer Institute, Boston, MA, USA; Department of Pediatrics, Boston Children's Hospital, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Ananth+P%22">Ananth P</searchLink>; Department of Pediatrics, Cancer Outcomes, Public Policy and Effectiveness Research (COPPER) Center, Yale School of Medicine, New Haven, CT, USA.
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%229211274%22">Intensive & critical care nursing</searchLink> [Intensive Crit Care Nurs] 2026 Jul 16; Vol. 96, pp. 104498. <i>Date of Electronic Publication: </i>2026 Jul 16.
– Name: TypePub
  Label: Publication Type
  Group: TypPub
  Data: Journal Article
– Name: TitleSource
  Label: Journal Info
  Group: Src
  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier%22">Elsevier </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>9211274 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1532-4036 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2209643397%22">09643397 </searchLink><i>NLM ISO Abbreviation: </i>Intensive Crit Care Nurs <i>Subsets: </i>MEDLINE
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=42462542
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1016/j.iccn.2026.104498
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        StartPage: 104498
    Titles:
      – TitleFull: Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practice.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Broden Arciprete EG
      – PersonEntity:
          Name:
            NameFull: Michelson KN
      – PersonEntity:
          Name:
            NameFull: Feder SL
      – PersonEntity:
          Name:
            NameFull: Marr JW
      – PersonEntity:
          Name:
            NameFull: Al-Roub N
      – PersonEntity:
          Name:
            NameFull: Gouda SR
      – PersonEntity:
          Name:
            NameFull: Jones AM
      – PersonEntity:
          Name:
            NameFull: Schopen AB
      – PersonEntity:
          Name:
            NameFull: Tapper AK
      – PersonEntity:
          Name:
            NameFull: Pasek TA
      – PersonEntity:
          Name:
            NameFull: Kelly RJ
      – PersonEntity:
          Name:
            NameFull: Morris LR
      – PersonEntity:
          Name:
            NameFull: Olszewski AE
      – PersonEntity:
          Name:
            NameFull: Gallagher C
      – PersonEntity:
          Name:
            NameFull: Taylor JA
      – PersonEntity:
          Name:
            NameFull: McCarthy SB
      – PersonEntity:
          Name:
            NameFull: Snaman JM
      – PersonEntity:
          Name:
            NameFull: Ananth P
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 16
              M: 07
              Text: 2026 Jul 16
              Type: published
              Y: 2026
          Identifiers:
            – Type: issn-electronic
              Value: 1532-4036
          Numbering:
            – Type: volume
              Value: 96
          Titles:
            – TitleFull: Intensive & critical care nursing
              Type: main
ResultId 1