Humanistic and economic burden among caregivers of adults and children with sickle cell disease and recurrent vaso-occlusive crises.

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Title: Humanistic and economic burden among caregivers of adults and children with sickle cell disease and recurrent vaso-occlusive crises.
Authors: Lilly L; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Brown D; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Li N; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Drahos J; Vertex Pharmaceuticals Incorporated, Boston, MA, USA. jennifer_drahos@vrtx.com., Calvert M; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.; Birmingham Health Partners Centre for Regulatory Science and Innovation, Centre of Excellence in Regulatory Science and Innovation for Advanced Therapies (CERSI-AT), University of Birmingham, Birmingham, UK.; LifeArc Centre for Acceleration of Rare Disease Trials, University of Birmingham, Birmingham, UK., Mason A; Sickle Cell Care Manchester, Manchester, UK., Pakbaz Z; Division of Hematology/Oncology, The University of California Irvine School of Medicine, Orange, CA, USA., Shah F; Burjeel Medical City, United Arab Emirates, Khalifa University, Abu Dhabi, UAE., Valentine A; Sick Cells, Washington, DC, USA., Franks B; Prime HCD, Knutsford, Cheshire, UK., Santana IR; Prime HCD, Knutsford, Cheshire, UK.
Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2026 Jul 23; Vol. 35 (9). Date of Electronic Publication: 2026 Jul 23.
Publication Type: Journal Article
Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:1573-2649
DOI:10.1007/s11136-026-04347-0