Just Google it: Evaluating Online Mental Health Information for Parents of Children with Cystic Fibrosis.
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| Title: | Just Google it: Evaluating Online Mental Health Information for Parents of Children with Cystic Fibrosis. |
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| Authors: | Anstey, Hannah J., Caissie, Danielle M., Dollimount, Anna, King, Sara, Switzer, Heather, Wright, Kristi D. |
| Source: | Journal of Child & Family Studies. Nov2024, Vol. 33 Issue 11, p3602-3611. 10p. |
| Subjects: | Mental health, Health, Content analysis, Readability (Literary style), Information resources, Internet, Help-seeking behavior, Thematic analysis, Search engines, Evidence-based medicine, Cystic fibrosis, Access to information |
| Abstract: | Cystic fibrosis (CF) is a lifelong illness that impacts the lungs and digestive system and often results in early death. Anxiety and depression are common amongst individuals with CF and their parents/guardians. While parent/guardian mental health has been shown to be impacted by their child's CF diagnosis; most mental health supports and recommendations focus solely on people with the diagnosis and not their parents/guardians. The current study investigated the quality of online mental health information for parents/guardians of children with CF. Nineteen CF parent/guardians support-themed websites were coded using standardized criteria. Websites were evaluated for accountability, presentation, alignment with evidence-based practice, readability, and recommendations to seek professional support. Results indicated that very few sites focused on the mental health of parents/guardians of children with CF and the quality of information was generally poor. Most websites met less than half of the standardized criteria and were poorly aligned with evidence-based practice. Increased quantity and quality of mental health information available in accessible forms for this group is needed. Highlights: Mental health information for parents/guardians of children with cystic fibrosis is not readily available online. When available, mental health information was poorly aligned with evidence-based practice recommendations. Mental health information online for parents/guardians of children with cystic fibrosis is not presented in an accessible format. [ABSTRACT FROM AUTHOR] |
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| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | Cystic fibrosis (CF) is a lifelong illness that impacts the lungs and digestive system and often results in early death. Anxiety and depression are common amongst individuals with CF and their parents/guardians. While parent/guardian mental health has been shown to be impacted by their child's CF diagnosis; most mental health supports and recommendations focus solely on people with the diagnosis and not their parents/guardians. The current study investigated the quality of online mental health information for parents/guardians of children with CF. Nineteen CF parent/guardians support-themed websites were coded using standardized criteria. Websites were evaluated for accountability, presentation, alignment with evidence-based practice, readability, and recommendations to seek professional support. Results indicated that very few sites focused on the mental health of parents/guardians of children with CF and the quality of information was generally poor. Most websites met less than half of the standardized criteria and were poorly aligned with evidence-based practice. Increased quantity and quality of mental health information available in accessible forms for this group is needed. Highlights: Mental health information for parents/guardians of children with cystic fibrosis is not readily available online. When available, mental health information was poorly aligned with evidence-based practice recommendations. Mental health information online for parents/guardians of children with cystic fibrosis is not presented in an accessible format. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 10621024 |
| DOI: | 10.1007/s10826-024-02934-8 |
