Just Google it: Evaluating Online Mental Health Information for Parents of Children with Cystic Fibrosis.

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Title: Just Google it: Evaluating Online Mental Health Information for Parents of Children with Cystic Fibrosis.
Authors: Anstey, Hannah J., Caissie, Danielle M., Dollimount, Anna, King, Sara, Switzer, Heather, Wright, Kristi D.
Source: Journal of Child & Family Studies. Nov2024, Vol. 33 Issue 11, p3602-3611. 10p.
Subjects: Mental health, Health, Content analysis, Readability (Literary style), Information resources, Internet, Help-seeking behavior, Thematic analysis, Search engines, Evidence-based medicine, Cystic fibrosis, Access to information
Abstract: Cystic fibrosis (CF) is a lifelong illness that impacts the lungs and digestive system and often results in early death. Anxiety and depression are common amongst individuals with CF and their parents/guardians. While parent/guardian mental health has been shown to be impacted by their child's CF diagnosis; most mental health supports and recommendations focus solely on people with the diagnosis and not their parents/guardians. The current study investigated the quality of online mental health information for parents/guardians of children with CF. Nineteen CF parent/guardians support-themed websites were coded using standardized criteria. Websites were evaluated for accountability, presentation, alignment with evidence-based practice, readability, and recommendations to seek professional support. Results indicated that very few sites focused on the mental health of parents/guardians of children with CF and the quality of information was generally poor. Most websites met less than half of the standardized criteria and were poorly aligned with evidence-based practice. Increased quantity and quality of mental health information available in accessible forms for this group is needed. Highlights: Mental health information for parents/guardians of children with cystic fibrosis is not readily available online. When available, mental health information was poorly aligned with evidence-based practice recommendations. Mental health information online for parents/guardians of children with cystic fibrosis is not presented in an accessible format. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Child & Family Studies is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Just Google it: Evaluating Online Mental Health Information for Parents of Children with Cystic Fibrosis.
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  Data: <searchLink fieldCode="AR" term="%22Anstey%2C+Hannah+J%2E%22">Anstey, Hannah J.</searchLink><br /><searchLink fieldCode="AR" term="%22Caissie%2C+Danielle+M%2E%22">Caissie, Danielle M.</searchLink><br /><searchLink fieldCode="AR" term="%22Dollimount%2C+Anna%22">Dollimount, Anna</searchLink><br /><searchLink fieldCode="AR" term="%22King%2C+Sara%22">King, Sara</searchLink><br /><searchLink fieldCode="AR" term="%22Switzer%2C+Heather%22">Switzer, Heather</searchLink><br /><searchLink fieldCode="AR" term="%22Wright%2C+Kristi+D%2E%22">Wright, Kristi D.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Child+%26+Family+Studies%22">Journal of Child & Family Studies</searchLink>. Nov2024, Vol. 33 Issue 11, p3602-3611. 10p.
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  Data: <searchLink fieldCode="DE" term="%22Mental+health%22">Mental health</searchLink><br /><searchLink fieldCode="DE" term="%22Health%22">Health</searchLink><br /><searchLink fieldCode="DE" term="%22Content+analysis%22">Content analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Readability+%28Literary+style%29%22">Readability (Literary style)</searchLink><br /><searchLink fieldCode="DE" term="%22Information+resources%22">Information resources</searchLink><br /><searchLink fieldCode="DE" term="%22Internet%22">Internet</searchLink><br /><searchLink fieldCode="DE" term="%22Help-seeking+behavior%22">Help-seeking behavior</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Search+engines%22">Search engines</searchLink><br /><searchLink fieldCode="DE" term="%22Evidence-based+medicine%22">Evidence-based medicine</searchLink><br /><searchLink fieldCode="DE" term="%22Cystic+fibrosis%22">Cystic fibrosis</searchLink><br /><searchLink fieldCode="DE" term="%22Access+to+information%22">Access to information</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: Cystic fibrosis (CF) is a lifelong illness that impacts the lungs and digestive system and often results in early death. Anxiety and depression are common amongst individuals with CF and their parents/guardians. While parent/guardian mental health has been shown to be impacted by their child's CF diagnosis; most mental health supports and recommendations focus solely on people with the diagnosis and not their parents/guardians. The current study investigated the quality of online mental health information for parents/guardians of children with CF. Nineteen CF parent/guardians support-themed websites were coded using standardized criteria. Websites were evaluated for accountability, presentation, alignment with evidence-based practice, readability, and recommendations to seek professional support. Results indicated that very few sites focused on the mental health of parents/guardians of children with CF and the quality of information was generally poor. Most websites met less than half of the standardized criteria and were poorly aligned with evidence-based practice. Increased quantity and quality of mental health information available in accessible forms for this group is needed. Highlights: Mental health information for parents/guardians of children with cystic fibrosis is not readily available online. When available, mental health information was poorly aligned with evidence-based practice recommendations. Mental health information online for parents/guardians of children with cystic fibrosis is not presented in an accessible format. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Journal of Child & Family Studies is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1007/s10826-024-02934-8
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        Text: English
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      Pagination:
        PageCount: 10
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    Subjects:
      – SubjectFull: Mental health
        Type: general
      – SubjectFull: Health
        Type: general
      – SubjectFull: Content analysis
        Type: general
      – SubjectFull: Readability (Literary style)
        Type: general
      – SubjectFull: Information resources
        Type: general
      – SubjectFull: Internet
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      – SubjectFull: Help-seeking behavior
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      – SubjectFull: Evidence-based medicine
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      – SubjectFull: Cystic fibrosis
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      – SubjectFull: Access to information
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      – TitleFull: Just Google it: Evaluating Online Mental Health Information for Parents of Children with Cystic Fibrosis.
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              Text: Nov2024
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              Y: 2024
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