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Understanding Aggression in SATB2‐Associated Syndrome: A Mixed‐Methods Study Exploring Caregiver Perspectives.

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Title: Understanding Aggression in SATB2‐Associated Syndrome: A Mixed‐Methods Study Exploring Caregiver Perspectives.
Authors: Shelley, Lauren (AUTHOR), Pearson, Effie (AUTHOR), Tarver, Joanne (AUTHOR), Waite, Jane (AUTHOR)
Source: Journal of Applied Research in Intellectual Disabilities. May2026, Vol. 39 Issue 3, p1-24. 24p.
Subjects: Attitudes toward illness, Data analysis, Research funding, Questionnaires, Interviewing, Content analysis, Chi-squared test, Aggression (Psychology), Research methodology, Statistics, Data analysis software, Comparative studies, Multiple human abnormalities, Caregiver attitudes, Disease complications
Abstract: Background: SATB2‐associated syndrome (SAS) is a neurodevelopmental condition characterised by developmental delay, speech impairment, and craniofacial anomalies. High rates of aggression are reported in SAS, yet the profile and contributing factors remain poorly understood. This study explored caregiver perspectives on aggression in SAS. Methods: Caregivers of 37 individuals with SAS (M age = 11.42 years) completed questionnaires on adaptive ability, aggression and behavioural function. Semi‐structured interviews with 34 caregivers explored contextual factors such as triggers, co‐occurring emotions, and management strategies. Results: Aggression was reported in 87% of individuals, with frequent forms including pulling/grabbing (84%) and hitting with a body part (69%) or object (53%). Aggression was often linked to frustration, anxiety, and triggers relating to demands, routines, repetitive behaviour, and tangibles. Caregivers described varied management strategies and background factors influencing aggression. Conclusion: Findings provide the first detailed description of aggression in SAS, highlighting vulnerabilities to guide tailored behavioural assessment and interventions. Lay Summary: People with SATB2‐associated syndrome (SAS) may show 'aggressive' behaviours, such as pulling, grabbing, or hitting others.Aggression is commonly linked to frustration, anxiety, and triggers like demands, changes in routines, repetitive behaviours, or accessing specific items.Caregivers use a range of strategies to manage aggression, while few individuals with SAS use their own strategies to calm or regulate themselves.These findings improve understanding of aggression in SAS and can help families, clinicians, and researchers provide more personalised support and interventions. [ABSTRACT FROM AUTHOR]
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Database: Psychology and Behavioral Sciences Collection
Description
Abstract:Background: SATB2‐associated syndrome (SAS) is a neurodevelopmental condition characterised by developmental delay, speech impairment, and craniofacial anomalies. High rates of aggression are reported in SAS, yet the profile and contributing factors remain poorly understood. This study explored caregiver perspectives on aggression in SAS. Methods: Caregivers of 37 individuals with SAS (M age = 11.42 years) completed questionnaires on adaptive ability, aggression and behavioural function. Semi‐structured interviews with 34 caregivers explored contextual factors such as triggers, co‐occurring emotions, and management strategies. Results: Aggression was reported in 87% of individuals, with frequent forms including pulling/grabbing (84%) and hitting with a body part (69%) or object (53%). Aggression was often linked to frustration, anxiety, and triggers relating to demands, routines, repetitive behaviour, and tangibles. Caregivers described varied management strategies and background factors influencing aggression. Conclusion: Findings provide the first detailed description of aggression in SAS, highlighting vulnerabilities to guide tailored behavioural assessment and interventions. Lay Summary: People with SATB2‐associated syndrome (SAS) may show 'aggressive' behaviours, such as pulling, grabbing, or hitting others.Aggression is commonly linked to frustration, anxiety, and triggers like demands, changes in routines, repetitive behaviours, or accessing specific items.Caregivers use a range of strategies to manage aggression, while few individuals with SAS use their own strategies to calm or regulate themselves.These findings improve understanding of aggression in SAS and can help families, clinicians, and researchers provide more personalised support and interventions. [ABSTRACT FROM AUTHOR]
ISSN:13602322
DOI:10.1111/jar.70247