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Understanding Aggression in SATB2‐Associated Syndrome: A Mixed‐Methods Study Exploring Caregiver Perspectives.

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Title: Understanding Aggression in SATB2‐Associated Syndrome: A Mixed‐Methods Study Exploring Caregiver Perspectives.
Authors: Shelley, Lauren (AUTHOR), Pearson, Effie (AUTHOR), Tarver, Joanne (AUTHOR), Waite, Jane (AUTHOR)
Source: Journal of Applied Research in Intellectual Disabilities. May2026, Vol. 39 Issue 3, p1-24. 24p.
Subjects: Attitudes toward illness, Data analysis, Research funding, Questionnaires, Interviewing, Content analysis, Chi-squared test, Aggression (Psychology), Research methodology, Statistics, Data analysis software, Comparative studies, Multiple human abnormalities, Caregiver attitudes, Disease complications
Abstract: Background: SATB2‐associated syndrome (SAS) is a neurodevelopmental condition characterised by developmental delay, speech impairment, and craniofacial anomalies. High rates of aggression are reported in SAS, yet the profile and contributing factors remain poorly understood. This study explored caregiver perspectives on aggression in SAS. Methods: Caregivers of 37 individuals with SAS (M age = 11.42 years) completed questionnaires on adaptive ability, aggression and behavioural function. Semi‐structured interviews with 34 caregivers explored contextual factors such as triggers, co‐occurring emotions, and management strategies. Results: Aggression was reported in 87% of individuals, with frequent forms including pulling/grabbing (84%) and hitting with a body part (69%) or object (53%). Aggression was often linked to frustration, anxiety, and triggers relating to demands, routines, repetitive behaviour, and tangibles. Caregivers described varied management strategies and background factors influencing aggression. Conclusion: Findings provide the first detailed description of aggression in SAS, highlighting vulnerabilities to guide tailored behavioural assessment and interventions. Lay Summary: People with SATB2‐associated syndrome (SAS) may show 'aggressive' behaviours, such as pulling, grabbing, or hitting others.Aggression is commonly linked to frustration, anxiety, and triggers like demands, changes in routines, repetitive behaviours, or accessing specific items.Caregivers use a range of strategies to manage aggression, while few individuals with SAS use their own strategies to calm or regulate themselves.These findings improve understanding of aggression in SAS and can help families, clinicians, and researchers provide more personalised support and interventions. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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DbLabel: Psychology and Behavioral Sciences Collection
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PubType: Academic Journal
PubTypeId: academicJournal
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  Label: Title
  Group: Ti
  Data: Understanding Aggression in SATB2‐Associated Syndrome: A Mixed‐Methods Study Exploring Caregiver Perspectives.
– Name: Author
  Label: Authors
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  Data: <searchLink fieldCode="AR" term="%22Shelley%2C+Lauren%22">Shelley, Lauren</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pearson%2C+Effie%22">Pearson, Effie</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Tarver%2C+Joanne%22">Tarver, Joanne</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Waite%2C+Jane%22">Waite, Jane</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Applied+Research+in+Intellectual+Disabilities%22">Journal of Applied Research in Intellectual Disabilities</searchLink>. May2026, Vol. 39 Issue 3, p1-24. 24p.
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  Data: <searchLink fieldCode="DE" term="%22Attitudes+toward+illness%22">Attitudes toward illness</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis%22">Data analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Content+analysis%22">Content analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Chi-squared+test%22">Chi-squared test</searchLink><br /><searchLink fieldCode="DE" term="%22Aggression+%28Psychology%29%22">Aggression (Psychology)</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Statistics%22">Statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Multiple+human+abnormalities%22">Multiple human abnormalities</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+complications%22">Disease complications</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: SATB2‐associated syndrome (SAS) is a neurodevelopmental condition characterised by developmental delay, speech impairment, and craniofacial anomalies. High rates of aggression are reported in SAS, yet the profile and contributing factors remain poorly understood. This study explored caregiver perspectives on aggression in SAS. Methods: Caregivers of 37 individuals with SAS (M age = 11.42 years) completed questionnaires on adaptive ability, aggression and behavioural function. Semi‐structured interviews with 34 caregivers explored contextual factors such as triggers, co‐occurring emotions, and management strategies. Results: Aggression was reported in 87% of individuals, with frequent forms including pulling/grabbing (84%) and hitting with a body part (69%) or object (53%). Aggression was often linked to frustration, anxiety, and triggers relating to demands, routines, repetitive behaviour, and tangibles. Caregivers described varied management strategies and background factors influencing aggression. Conclusion: Findings provide the first detailed description of aggression in SAS, highlighting vulnerabilities to guide tailored behavioural assessment and interventions. Lay Summary: People with SATB2‐associated syndrome (SAS) may show 'aggressive' behaviours, such as pulling, grabbing, or hitting others.Aggression is commonly linked to frustration, anxiety, and triggers like demands, changes in routines, repetitive behaviours, or accessing specific items.Caregivers use a range of strategies to manage aggression, while few individuals with SAS use their own strategies to calm or regulate themselves.These findings improve understanding of aggression in SAS and can help families, clinicians, and researchers provide more personalised support and interventions. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=194784105
RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1111/jar.70247
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 24
        StartPage: 1
    Subjects:
      – SubjectFull: Attitudes toward illness
        Type: general
      – SubjectFull: Data analysis
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Content analysis
        Type: general
      – SubjectFull: Chi-squared test
        Type: general
      – SubjectFull: Aggression (Psychology)
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Statistics
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Multiple human abnormalities
        Type: general
      – SubjectFull: Caregiver attitudes
        Type: general
      – SubjectFull: Disease complications
        Type: general
    Titles:
      – TitleFull: Understanding Aggression in SATB2‐Associated Syndrome: A Mixed‐Methods Study Exploring Caregiver Perspectives.
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            NameFull: Shelley, Lauren
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            NameFull: Pearson, Effie
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            NameFull: Tarver, Joanne
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            NameFull: Waite, Jane
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            – D: 01
              M: 05
              Text: May2026
              Type: published
              Y: 2026
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            – TitleFull: Journal of Applied Research in Intellectual Disabilities
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